CHEMO RECHALLENGE DAYS 109,110 & 111

Fight and grind and play.

Friday, its chemo day and I am brought hot water by my partner she prepares to go to the gym for her aqua class. I decide to accompany her and dress quickly. I take my meds and then I am off to the gym lounge. My partner goes off to the pool and I sit in the lounge with a bacon roll and a Lucozade sport reading Angela Carter’s The Bloody Chamber. Its a 1979 book that created a stir when it was first published as it was thought by some to have been soft pornography made out of old children’s fairy tales.

Worth a read if you have not come across it before.

I find the book is a sad comment on the nature of men and women but I think it reflects what as going on in gender politics at the time of it being written. My partner emerges from her aqua class and we drive home to prepare for the Uber trip to the Chemo. The Uber arrives and we pile in and chat as we get driven round the back streets of Leicester to the children’s A&E drop off point. Its the easiest way to get to the oncology centre by walking through the hospital, trying to park by oncology is just not possible unless you are an ambulance. So we march to the oncology unit and I hand in my “dance card” and I raid the vending machine for a bottle of water and a couple of Twix.

We are greeted by some familiar faces in the waiting area and we begin to chat. We ask about the travel insurance that people are using and discover that there is a company that does cancer travel insurance very compassionately and at reasonable prices. It is even possible to get an annual contact. After some more useful chat I get called in about half an hour after the appointment time. Its a bout par for the course. The nurse introduces herself and sets about stinking the cannula in my hand. Interestingly choosing to use a different vein to usual.

An interesting move to a new vein.

I have my now regular pre-chemo preventative meds and wait for thirty minutes to get them in to my system. I missed completely that the team had plugged my chemo bag in as it was transparent, my chemo bag is usually black or yellow to protect it from UV light, to which it is sensitive. After a while I called the nurse over to ask why my chemo was not starting as I thought I was getting saline. She showed me the label on the bag and I was of course embarrassed and had to explain my misunderstanding. Apparently different pharmacists make up the chemo and use different bags. All went well after this and in another thirty minutes I was out and on my way for a much needed pee.

My partner and I Ubered home and as it was getting late we opted for a fish and chip tea, World Indoor Athletics followed by some TV drama stuff until it was time to take my meds and go to bed. I can could feel my stomach beginning to react to all the drugs it had received and so I delayed actually gong to bed until it felt a bit more settled.

Saturday I wake up with all my post chemo symptoms but I have enough about me to message my son in Stockholm who is getting married today to his partner. Their children, my grandchildren, will be attending the wedding of their parents. Its a usual thing in the family. My father and his siblings attended their parents wedding, my children attended mine, my other grandchildren will attend their parents wedding in due course. Clearly there is a family trait in there somewhere. I make breakfast, take my meds and and start to prepare for the Poetry Stanza zoom meeting in the afternoon. There are a couple of late poems to download and read through. I watch the mid day televised football match and then I sit down to the computer in the office and log on to the poetry stanza.

We agree that if we do not stop for a break we should be able to get through all the poems in two hours and so we set off. It goes well, there are good poems this month, there always are, but this months seemed to flow well. My non cancerous poem was received well and I had useful feedback so that I can make a couple of tweaks to make the reading easier. I read the final poem, which I really wanted to do as it was a poem that had stuck with me as soon a I read it With the stanza over I returned to the sofa and watched sport keeping an eye on my messages to tell me that all had gone well at my sons wedding. In no time at all I had pictures of the happy couple.

My evening was spent watching athletics and then episodes of a new drama series. The chemo drugs were still playing fast and loose with my gut so I stayed up late and waited for things to settle before finally gong to bed. It gave me a chance to finish the Bloody Chamber and to start my re-read of the Wasp Factory.

Sunday and I wake relatively early to find my partner reading as usual before getting up. I make her a cup of tea having opened up the garden raised boxes and emptied Daisy the dishwasher. We decide to have breakfast out and get ready for a drive to he nearest good garden centre restaurant. I take my morning meds and drive to the garden centre. There I have the Lady Gardeners breakfast and a ginger beer. My partner and I chat and get up to speed with plans and thoughts. I am impressed by the bloke on the next table who is downing breakfast with orange juice and prosecco. My chemo has kicked in and the only taste I have in my mouth is one of flannel and a hint of ginger. On our way out we buy more packs of bedding plants as there are still empty pots and space in the beds to be filled until the home sown plants are ready to go out after the last frosts. Once home its time to catch up with the blog drafting and soem of the things I have on my “to do” list. One of those is to seek permission from the author of the poem that I am so taken by to put it on my poetry website with soem comments by me. I shall then lapse into watching the football league cup final between Manchester City and Arsenal. I am feeling quite good at the moment and it is helped by the fact that I do not have to face my 28 day jab this Monday but have a full weeks respite before I need to face that again. I am still feeling fatigued and need to rest but I am feeling hopeful, after all my latest oncology review report says I am dealing with the chemo rechallenge “remarkably well”. I’ll take that for now. Eventually Tesco deliver my order later than expected leaving me to take my night meds and going off to bed to start another week.

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By the cherry blossom I mark my seasons

CHEMO RECHALLENGE DAY 107 & 108

Fight and never regret the decision

Wednesday and it oncology review day. My partner brings me a hot water and then goes off to see her mother with her brother. A friend rings me on her birthday and we chat and talk about gifts and celebrations for the day. It was good to hear her in such good form. I get up and make breakfast and take my morning meds. The oncologist could ring any time between 11:30 and 2:30pm so I have to find an activity to keep me occupied while I wait. As I scroll through my news stream, which is mostly adverts and old news rehashed in the most sensational way I come across the BIBA, Best Indie Book Awards. I suspect it is an American money making scam but I am feeling devil may care and go to the website. I enter The Cancer Years Anthology: Man to Man in two categories at $65 a throw. The awards are announced in the Autumn, I do not for one moment think I am going to get anything but I really do not care. With my distraction done I read more of Oranges aren’t the only fruit. My partner returns but still no oncology call. Suddenly the phone rings and the oncology registrar is talking to me.

Normally the call lasts about 30 seconds if I am lucky but this registrar is positively chatty. He asks about my fatigue and how I am coping and we have a conversation. He tells me that my bloods are good and the drop in my PSA is good. He also notes that my kidney function is improving (there goes my excuse to have a glass of red wine), which seems to please him. He gives me the go ahead to go to cycle 5 on Friday. When I tell him that I have a CT scan on the 25th of March he suggests a face to face meeting for the next review, I eagerly agree and note that this will be a mid point review. The phone call ends and I come away feeling that I have been listened to and not played “how long can I keep the oncologist on the line”.

It is a lovely sunny day and warm so my partner is in the garden opening the raised beds and pottering around trying to cut the lawn edges. The trimmers are old and blunt so the activity does not last long. I join her in the garden and get the old Flymo out of the storage shed. Its not been out for years, not since we got a garden chap in to do the lawns. I plug it in and get nothing, only one thing for it and that is to take it apart and give it some care. I gather up tools from the garage and set about getting the “hood” off the machine. I eventually manage this and then clean the motor and oil all the bearings and the main shaft connected to the blade. I put is all back together again and try it once more. It works and when I test it on a small piece of lawn is cuts admirably. There is no stopping me now, I get the garden waste wheelie bin and start to mow the lawns. The smell of new mown grass is lovely and I keep going till I need to sit for a moment to rest. My partner comes and takes over the mowing while I do the grass box emptying and together we complete mowing both the front and back grassy areas. Its a job well done and makes the garden look so much better. Over the next couple of days the lawns will dry out a bit and regain their even green look. The mower goes back into the storage shed and I tidy up my tools and the other odds and ends that I needed to move to get the mower working.

First cut after winter, now it can green up and dry out

With everything away it is time to retreat to the sofa and cool off and look forward to tea. There is an early evening football match in which Newcastle get thoroughly thrashed 7-2. My partner and I watch the penultimate episode of series 11 of The Brokenwood Mysteries and then I watch Liverpool win their European match. I take my night meds and set the dishwasher going before going to bed feeling tired but pleased to have got the jump on the garden.

Thursday arrives and it is still sunny. My partner brings me a hot water, which I manage to spill and so get up quicker than I had anticipated. I make breakfast and take my meds. Todays meds include the additional pre chemo steroids that are supposed to help protect me. I get them down me and then I clear away the rest of the tools I used to mend the mower yesterday. The garage where the tools are kept and which is also a gym is in a very untidy state so it takes a while to get some order back into it. Finally I am satisfied and suggest to my partner that we go to the garden centre to get new edging shears.

The garden centre is too much of a temptation so we soon have a trolley full of plants as well as a new pair of edge trimmers. There is time for a raspberry milkshake and a pee before we load up Elsie (the car) and drive home. With the plants stowed I head for the sofa and start to draft the blog for the last couple of days. I also download another poem for Saturdays poetry stanza. Todays poem really catches my verbal eye and reminds me strongly of a Gill Scott Heron track called “The revolution will not be televised”, a 1970 track. Its a great track so I share it with you.

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The poem by a fellow member of the poetry Stanza reminded me of the Gill Scott Heron tack but it was inspired by a Speech by Mark Carney the Canadian Prime Minister. Its a masterful summary of power as it is today and the option for the middle power nations. It contains the brilliant line: “If we’re not at the table, we’re on the menu.” Its 16 minutes long but it is well worth the effort. I wish I could share the poem that came from it but it belongs to someone else. The video starts in French but very briefly, what follows is well worth the wait. Sit down with a coffee and a red wine and enjoy someone telling it how it is currently.

My partner goes out to lunch and I write the blog, drink Red Bull and measure up the area in the garden where the swing seat is. I have taken of its winter cover and now plan to have a deck put in for the swing seat to stand on properly. A friend calls on her way to do Easter shopping in her lunch time, apparently she found chocolate in the back of the pantry that dated back to last Easter, I am amazed, how did that happen in a household with small people in it? I return to contacting a man about a deck. In the afternoon I sit on the swing seat and read thinking that tonight I shall watch the last available Brokenwood Mystery. A new search for a drama series will soon be under way. There will be night meds and pre-emptive steroids before sleep tonight. Tomorrow is chemo rechallenge day, double day time steroids and the Uber to and from the hospital. Its not my favourite day but Cycle five takes me half way through the rechallenge. I’m still here, vertical and above ground and intend to be for a while yet.

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There is only one Collin

CHEMO RECHALLENGE DAY 106

Fight and don’t count the cost.

Tuesday comes around and its a sunny St Patricks day. My partner brings me hot water and a round of buttered toast before I get up and shower. By the time I have got myself together and taken my morning meds its time to drive my partner to the gym for her morning aqua class. I settle down on a sofa and read Oranges Are Not The Only Fruit by Jeanette Winterson.

I laughed a lot in the first 50 pages

I have read about the first fifty pages and laughed a lot, which I take as a good sign. Whether or not I was supposed to laugh quite as much I am not sure but I think from the tone of the book I rather think I was supposed to. Interrupted only by a bacon roll and a Lucozade sport I read for the full juration of the aqua class and subsequent shower at which point my partner and my eldest daughter appeared ready to be driven home.

Once home I made myself lunch and sat down to read a letter from a friend. In fact it was two letters. I read my letters slowly and to the taste of peppermint creams, a current favourite. It would appear that I am not the only one that is having a difficult time and I was sad to read that my friend has gone into hospital for a procedure. As the weather is sunny I change into shorts and set about finding homes for all the books and toys that my grandsons used over the weekend. I even put new batteries into the book that plays tunes to the sing along pages. With the decks cleared until next time I head for the garden and refill the bird feeders. My garden flock get through a considerable amount of seed but more voraciously through the fat balls impregnated with seeds. I retreat to the lounge to and check my emails to see if anyone has put forward poems for this weeks Stanza meeting. There are two or three poems that I move to my Stanza folder before sending mine off. I decide to go with a none cancer one, I am not in the mood to be sharing that stuff at the moment so I choose something more neutral.

507
Feet on cold lino
nose against the frost free
little space scrapped
on the window in my room.
There is a smog
pierced dimly by gas light
and the clip clop of
the Sunlight laundry horse.
Its pig swill day,
the bucket is out
and I want to see
who collects it today.
The trees, still with
see me in the dark
white war rings,
loom indistinctly.
Today some sixty five
years on in progress
I watch an electric cart
pick up my plastic bin
full of food scraps,
not for swine
but to feed my thirst
for electricity.

507 11-03-2026

With my days admin out of the way I draft the blog as the sun sets and the heat goes out of the day, time to put the heating back on for the evening. There is tea and then more Brokenwood Mysteries, possibly a quick look at the football, but I am not very interested as all the English clubs are struggling and look like missing out on anything European this season. There will be night meds and then sleep but not before I have checked that I have everything ready for tomorrows oncology review. It will be by phone and I am guessing it will be another thirty second wonder when I will be told my PSA is down and I am good to go for Friday, when I will start cycle 5, the half way point.

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Time seems to fly by

CHEMO RECHALLENGE DAY 105

Fight and stay at it, cancer never gives up.

Monday and I wake up aware that I can hear a small person chatting away downstairs. My youngest daughter and her family are still here and doing the early morning getting up routine. My partner brings me a hot water and I get ready for the day. The family breakfasts together and the youngest grandson gets picked up and hugged a lot as the family get ready to drive home. The elder boy is full of beans and helps to organise things to go into the car. Eventually its time to wave the family goodbye as they zoom off in there car. My partner and I star to tidy up and return the house to normal. There are several challenges like how to fold up the temporary cot and getting the sofa bed to fold away neatly. My eldest daughter returns from work and expertly wrestles the play gym back into its cover. Eventually and a toasted tea cake later the house is clear and much of the stuff is away.

My poetry collection from the Koestler Awards arrives and I avidly read it. There is some good stuff in the collection, I wish I could share some but copyright would have me. There are one or two gems in the collection but also a lot of the rhyming stuff that many beginner poets think they have to do. Some of it gets by, some of it is clumsy. Having read the collection and revisited one or two of the poems I complete the blog piece on Prison Poetry that I am writing for the poetry website. I finally get it all drafted and then post it at prost8kancerman.com. With that done I start to draft todays ordinary blog while I wait for Tesco to deliver. Tonight my partner will be doing her singing lesson and my eldest daughter will be at art class so I will have a chink of time to myself. Usually there is a football match to watch but not tonight, even tough my team is playing. So I might just indulge in a mindlessly violent film, its a while since I have done that. I might also plan a day out, I am toying with the idea of returning to a big second hand book farm that is close by.

I read my way into the evening finishing H is for Hawk by Helen McDonald before sharing tea and moving onto a film. The film was terrible and I was glad when my partner joined me from an abandoned singing lesson and we moved onto a Brokenwood Mystery. Being tired after the busy weekend I take my night meds and get myself to bed. I have a day to ready myself for my oncology review on Wednesday.

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Like how PSA goes down and birthdays keep going up.

CHEMO RECHALLENGE DAY 103 & 104

Fight and keep on remorselessly

Saturday and I am up trying my best to help prepare for the arrival of my youngest daughter and her family, including the two youngest grandsons. They arrive mid morningish and the house is instantly full of child and baby paraphernalia. There is a quick lunch and there are visits to the shop and much playing. The eldest boy is full of beans and is constantly on the move. Its a delight to see him so lively and thriving. The youngest is sleepy baby but in those times of wakefulness he is smiley and very interested in what is going on around him.

It is the last weekend of the six nations rugby competition and there are still three countries that could win it. So in between playing, reading and cavorting I watch some rugby. As Ireland beat Wales, narrowly it becomes clear that the final match of the day between England and France will be a deciding game. No one gives England a chance given their performances so far. As it turns out England plays well but looses the game by two point. The French win the game and the championship with the last kick of the game.

The evening is part rugby and part Brokenwood Mysteries as I could not resist buying series 11. Everyone goes off to bed early and I linger to take my night meds and then finally go off to bed knowing I need to be up early in the morning as it is not only Mothers day but the day we are off to the zoo.

Sunday and I awake early and get myself ready for an early start to visit the local zoo. By 9:30 we have all piled into cars and are on our way. My partner has worked all the techno magic to get the visit sorted so when we arrive we sail through the entry. We head for the animals lead by the elder of the boys in his desire to see monkeys. The zoo is revamping a lot of its enclosures with the result that the monkeys are more difficult to find. After seeing the zebras, the rhino, giraffes and meercats we finally get to see an ape, gorillas to be exact.

Other apes proved to be a little more elusive, the Utang for example was clearly trying not to be seen.

Clearly covering yourself in straw makes you invisible..

We walked around until the cold and thirst overcame us and then we headed for the café at the entrance. The youngest was ready for a bottle and we all needed a rest. The café had a glass side which looked out over the snow leopards enclosure and to my surprise the leopard came to drink from its pool directly opposite where we were siting. Magnificent creature, but confines to a small enclosure.

Snow Leopard drinks close by.

After drinks and visits to the facilities we make our way back to the cars and head for home and something to eat. The eldest boy is happy as he has a new cuddly monkey to play with. Pretty soon people are either playing or napping and the house is full of children noises. I take the opportunity to start to draft the blog. After tea time there are birthday presents for my youngest daughter once the grandchildren are bathed, fed and safely settled down for the night. After an episode of Brokenwood Mysteries everyone but me goes to bed and I am left to watch Mock the Week, finish the Tesco order, take my night meds, set the dishwasher going and finish the blog. Then its off to bed.

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Sometimes its good just to stop and reflect.

CHEMO RECHALLENGE DAYS 101 & 102

Fight slow and steady

Thursday and I wake to a cloudy and grey day after a reasonable nights sleep. With breakfast and meds out of the way I am ready for when the electrician arrives to fit new kitchen lights. He arrives dead on time and beavers away for just over half an hour and then announces that he is all done. The new LED light are replacing old bulb halogen lights. The new ones run straight off the mains and are much brighter. I am really pleased with the outcome. I pay the electrician in cash because as he says “cash is always good.”

With the departure of the electrician I settle down to start to write a blog piece for the poetry web site. It is about prison poetry and focuses on some recent poetry that I have been reading. One of my sources materials is Charles Bronson’s 1999 book of drawings and poetry. It was difficult to obtain as nowhere seemed to have copies and many said it was unavailable. I eventually found a single copy and brought it at an inflated price. During the morning the Bronson book turns up and I set to and read it from beginning to end. It is an interesting experience, and adds an important element to what I am writing.

Charles Bronson now known as Charles Salvador

I have lunch before my partner goes out and I spend my afternoon reading and writing. I am still reading H for Hawk and becoming involved in what the outcome will be in the relationship between the falconer, the Goshawk and the the Falconers grieving for her father. By early evening I need to stop and watch a football match, eat tea and then while away my evening watching series 10 of The Brokenwood Mysteries. Before long its time for night meds and bed. Tomorrow is a bloods day, which means I get a PSA score. Down is the only way I want my PSA score to go.

Friday, bloods day and I wake up feeling off but get up to have breakfast and try to contribute to the organising that is need to prepare for the visit of the youngest grandchildren. My partner goes to do some shopping and I take the opportunity to catch up drafting the blog. At lunch time I wander down to the GP surgery, accompanied part of the way by my partner. When I get to the GP surgery the nurse calls me in and then takes twice as much blood as usual, apparently its time to check my cholesterol! I point out that I have more pressing issues than cholesterol but to no avail.

I meet my partner on the journey home as she returns from the village shop. There is a brief lunch and then the afternoon us spent getting the house ready for the weekend visit by our youngest daughter and her family. Slowly things come together, mostly due to my partners efforts. Eventually there is no more to be done, there is time to read and then tea is eaten. The evening sees the the end of series ten of The Brokenwood Mysteries and Death in Paradise. I return to the blog as I let TV give me wallpaper while I wait for my blood result to come through. At 11:45 my bloods come through and my PSA is down 2.2 to 6.2. This is a real result. All the pain of this cycle is now worth it. It justifies my original decision to go for the Chemo Rechallenge.

PSA 6.2, DOWN 2.2. WELL GO ME!

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PSA up or down?

CHEMO RECHALLENGE DAY 100

Fight and keep at it.

Wednesday and I wake early for me and listen to music while my partner gets ready to visit her mother. She brings me hot water and then leaves. I reflect for a bit and become aware that the new food swill collection is taking place. Our nice new plastic food waste bin is being emptied and will eventually be fed into a digester to produce something that can be used to make electricity. It prompts memories and a poem.

507
Feet on cold lino
nose against the frost free
little space scrapped
on the window in my room.
There is a smog
pierced dimly by gas light
and the clip clop of
the Sunlight laundry horse.
Its pig swill day,
the bucket is out
and I want to see
who collects it today.
The trees, still with
see me in the dark
white war rings,
loom indistinctly.
Today some sixty five
years on in progress
I watch an electric cart
pick up my plastic bin
full of food scraps,
not for swine
but to feed my thirst
for electricity.

507 11-03-2026

I get up and dressed, down my morning meds and then head for the village pub, picking up a paper on the way. I settle into a table and order coffee and a full English breakfast minus mushrooms and start the crosswords. I am aware that I am anticipating the arrival of the prison poetry books that I have ordered and remember how old clients in prison often found poetry as an outlet for their feelings as they emerged during therapy. Much of it was like adolescent first attempts and was at times painful but often people found very powerful forms of poetry to express their needs. Once found it seemed poetry became part of them. My thoughts prompted me to put down another poem.

506
Prison poetry,
the real stuff
not the personal
trapped inside struggles,
has an edge.
The taste of metal
in the mouth
and the surprise
of a stabbing.
Raw and passionate
held in arms
that ache in the night
for the lack of comfort.
The loss of intimacy
and being human
suddenly the only
bedfellow.
In a world of
muscular armour
suddenly words
become important
to hold what cannot
be shown.
506 11-03-2026

With breakfast over, crosswords done I slowly walk home and sit on the sofa drafting the blog and catching my breath, while sipping ginger beer. My partner returns and I carry on with my days to do list. I do not think I will make it to the garage to wash my car so focus on the rest of my list. I can afford to dawdle, I’m not n a rush. My partner is dining out for a late lunch so this afternoon is free for me to read and write. On checking my emails I find the new edition of the Visionary has arrived.

The weekly thing I get because I am a minister of the Universal Life Church

I am of course not a proper Minister just an internet one although I was awarded a doctorate of divinity, I have the certificate to prove it and in theory could conduct services in the USA and possibly in the UK. Away way in this edition of the Visionary was an article on the way US soldiers are being told by commanding officers that the Iran war is fulfilling an ancient religious prophecy and that it is causing issues in the armed forces. It also reported on a father who was convicted of murder when his 14 year old sin committed a school shooting. The Visionary is a fascinating insight to American politics and issues. Again in this issue it reports that Florida is about to pass a law that says churches can use armed members of the congregation as security without them needing to be licenced like other security workers, or trained. It means that the churches avoid paying for their security. The comment thread is fascinating. One church notes it uses a congregation member who is an ex serviceman and that his service is counted as his tithe to the church. Anyway included in the Visionary is a link to a video of a famous evangelical preacher from the Cornerstone church giving a sermon on Epic Fury and how it is part of a biblical prophecy. It is truly terrifying watching the performance and the depth of bigotry, intolerance and levels of cognitive distortions that are present. All served up to a huge live audience and a streamed internet audience. The ushers of course passed amongst the audience at the end when the congregation was singing God Bless America collecting for the Cornerstone Church. It is difficult to comprehend that so many buy this kind of message but once over that hurdle its easy to see why America is where it is. It is a nation at ideological war with itself so its no wonder that its court are continually full of litigation about rights, constitution and freedoms. It was an interesting, if disturbing, watch. The basic message was, if you are in the shit, pray.

By late afternoon my body is telling me that my gut is not well and I resort to being quiet and sipping Lucozade and drafting the blog. I sink back to reading and waiting for tonight’s European football and also more Brokenwood Mysteries. I have now invested in season 10 and I know that there is only one more series to go. It could be a crisis but I expect there will be something else, although I will miss the Russian pathologist Gina Kadinsky whose happy place is the morgue. I shall aim for an early night to see how my gut responds and then tomorrow the electrician arrives to put in new kitchen lights above the sink and work surface. I am hoping some of the poetry I have ordered will arrive and I can make a start on the piece for the poetry blog.

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Juggling is all about throwing. If you throw the balls into next doors garden you will never be able to juggle.

CHEM RECHALENGE DAY 99

Fight, night and day , it never relents

Tuesday and I wake to a departing household, physiotherapist and gym. I make a plain breakfast, take my morning meds and watch the BBC news channel. Its all Iran. I pop my washing into the machine and then I set about filling my drug dosettes for the next two weeks, which means it covers the start of my next chemo cycle, cycle 5, (the half way point). I have to pay careful attention as I have to eke out the daily steroids to get me to the next cycle when I will get more. The dosettes get filled and I recheck them at least twice so I know I have everything in the right order. By lunchtime I am fully organised, washing done and away, drugs sorted, and my mind wanders to amuse itself.

It is a while since I have blogged on the poetry website, http://prost8kancerman.com. So I begin to think about what might to the site. I notice in a news feed that a serving prisoner has an art exhibition in London. The name is familiar so I have a look at the article and find the person in question has at some point published poetry. I go on an internet hunt for the volume but find that everywhere says the book is unavailable. After a long search I find a copy, over priced, but I indulge myself, so with luck I shall be able to write the blog I want to about prison poets and/or poetry. Its is a mini project that will keep my mind ticking over and produce some sort of out put. My partner returns from the gym and whisks me away to the garden centre where I can indulge in a sausage sandwich and a real coffee. Of course with mothers day looming it was a good opportunity for my partner to buy a suitable floral bucket to take to her mothers when she next visits. Back home I catch up with the blog and plan my evening. There is a lot of European football on TV tonight but there is a limit to how much I can watch before I get bored, so I am guessing there will be more Brokenwood Mysteries to watch. My “to do” list is growing and one of the jobs is to take the petrol station and clean the car using the super “do everything” car cleaning bay, so tomorrow when my partner is visiting her mother I shall head for the array of pressure washers and give Elsie ( the car ) a good cleaning. Elsie has been with me now for 7 months and has now just over 2000 miles on her clock from where she started at 95. She is siting on the drive with a full tank waiting for us to take her on a journey, so once I can get the chemo rechallenge out of the way by mid July we shall be off somewhere.

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Balance and resilience are the foundations of survival.

CHEMO RECHALLENGE DAY 97 & 98

Fight and grind till it comes good.

Sunday and I wake from a reasonable nights sleep. There is one aim of the day and that is to get out of the house. I have not left the house since Monday when I went for my 28 day jab. I have experienced extreme soreness and fatigue unlike anything before. It has taken me seven days to recover any sort of energy beyond resting and reading. A couch potato week basically. My partner makes breakfast and we eat together. After taking my morning meds I watch a football match and then make the effort to get ready to go out. I am determined to do the driving an d indeed do, taking my partner to the local garden centre, where we indulged in afternoon jam scones and a coffee. While there we picked up food for tea and some odds and ends. I dove us home and felt much better for being out. I was tired but reassured that I was getting some energy back. Amazon deliver a new play mat for the youngest grandson who might visit next weekend, along with a jar of Berryman’s Chocolate Peppermint Creams. The latter is an attempt to have things I can taste as my taste buds are still not functioning due to chemo. I watch a rugby match and ease into the evening with tea and episodes of Brokenwood Mysteries until I down my night meds and go to bed early, tomorrow I have a chiropody appointment at 9:30 and I am not sure how I will fare. I ask Alexa to set the alarm for 7:30am.

Monday and the alarm I asked for goes off. I get out of bed and head for the shower. I go thorough my showering rituals, I am sure we all have them, and finally I am ready to dress and get breakfast until I realise that Alexa had activated the usual 06:45 morning alarm! It was only 07:09. I went back to bed and stayed there, clear and sweet smelling until 08:15, when I got up, dressed and made breakfast. It was a pleasure driving to the chiropodist feeling a bit more myself than I had felt for a while. My chiropodist is a foot magician, after my time with her my feet are very happy feet and feel terrific, it is one of the best things I do to look after me. I of course book in for my next appointment and then pop into the co-op for a paper, a sandwich and a bag of jam doughnuts.

On my way home I decide to fill my petrol tank, I have about half a tank but decide to fill up on the basis that any petrol I put into my car will have gained in value by the time I get home, given what is going on in Iran. I see it as an investment. I now have 400 plus miles in the tank, which could see me through for a time, perhaps even to the end of the American madness. Once home with my full tank I do the crosswords, eat the sandwich and then catch up with drafting the blog as my partner goes off to the gym to do aqua aerobics. I give my feet a treat by giving them a session on the “circulation Max X reviver”, a device for electrocuting the feet and calves. I have no idea if it does anything but I quite enjoy the tingle of electricity in my feet.

My foot electrocution machine. I enjoy the tingle.

My post arrives including a book from a friend, along with the dreaded council tax notification. The tax bill is what I expected but when I open the book bag I am delighted to find two books. I have heard of both and I might have read one but I do not remember. I now have reading material to see me through till Easter. Its a good place to be.

Two great books to keep my head fed.

So with ample reading material I settle down to a jam doughnut and a quiet afternoon until Tesco come a and deliver. Then it is all hands to the squirreling away. I am anticipating tonight’s football cup match as my team “the mighty Brentford” will be playing West Ham for a place in the quarter finals of the FA cup. Of course Brentford lost so I took my meds and went off to bed disappointed.

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Fixed in iron

CHEMO RECHALLENGE DAYS 95 & 96

Fight now and always till its done.

Friday and I wake up after a reasonable nights sleep to find my partner going to aqua aerobics and my eldest daughter going to Norwich for a weekend party. I finally get up, make breakfast and take my morning meds before settling down to read emails and send messages. I am feeling pretty spent already but go for a walk around the house to get me moving. I Am back on the sofa quite soon and find myself watching the Iranian war coverage. Its depressing but not actually that informative, there is little detail to make sense of what is going on. There is supposed to be devastation but it appears that huge amounts of infrastructure is standing and there is little evidence of military eradication. Perhaps I am too picky and want more from my war coverage.

My partner returns from the gym and joins me. In the afternoon I read my new book that arrived yesterday. It is H for Hawk, a true account of how a woman overcame her grief for her father by buying and training a Goshawk. She had been a falconer before and decided to take on the challenge of a Goshawk as a way to deal with her grief. It is a fascinating book as there is a lot about the history of falconry and the language that goes with it. It is a good read and I am looking forward to completing the book. I am intrigued to see if the Goshawk turns out to be as difficult to train as the book suggests they are. In the meantime my partner is busy dealing with the need to find a new carer for her mother as one of the regular team has suddenly become unavailable. It is a difficult time.

So far a good read.

The evening arrives I eat tea and my partner and I watch an international rugby match. Ireland get the better of an improving Wales. I am tired and have no energy left so take my night meds and go to bed. All I hope is that gradually I recover some energy, at least enough for my trip to the chiropodist on Monday.

Saturday and I wake up cold and not sure how I am. My partner and I lay in and drink warm drinks and assess where we are. Eventually we get up for breakfast and after, I start to catch up with the blog. This is a busy sporting weekend, England women’s football team play a world cup qualifier and there are two international rugby games. So for the afternoon I am going to be occupied. Before that I shall be messaging my son and his partner explaining way I am not going to be able to attend their wedding later in the month.

The day sees England beat Iceland in women’s football, Scotland beat France by a record score and England get beaten by Italy in the rugby. A day of surprises ends in chicken curry and an evening of Brokenwood Mysteries followed by night meds and bed.

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Make Waves!