CHEMO II DAY 173

Fight, just fight.

Tuesday and this really is the day the tree men come, it is also the last day of Cycle 6 of the chemo. I’m still in my dressing gown trying to book a lunch slot at a local restaurant for tomorrow when the first of the tree folk arrive. I met them at the back door and point at the trees that need to come down and they then start to produce a prodigious array of chainsaws. I leave them to gear up while I finish my booking and then have breakfast. My partner has already got our house guest’s on the way. I do my vitals and dress, preparing for the day to come.

Soon there is the whirr of chainsaws and I am completing my blood pressure Excel spread sheet for the end of this cycle. My vitals are generally good so my cycle averages are good. My arithmetic continues to give good logic. Pretty soon I am working to the background whirr of an industrial chipper. I know how I would get rid of a body, the machine is a real beast and chips huge chunks of wood. A human would be wetter but no trouble for this beast of a machine. My partner makes them tea before going off for a birthday coffee with a friend. Once she has gone I wrap her presents and write the card in preparation for tonight. The post man brings a welcome letter from a friend which I read with coffee and a slab of fruit card. Then its my turn to go out as I leave I note the tree folk are pretty nimble.

Agile tree folk
The beast machine

I go to the post office to send my Christmas cards and then pick up my car and drive into town. As usual I park up in a town centre car park. I’m on the second floor and as I walk out I notice a young person curled up in the corner with the usual survival paraphernalia. As I pass by the young woman say hello. She look about fifteen. I walk down to the hospital and go to the pharmacy. One of the pharmacy workers takes my details and starts to hunt for my prescription. This is not a successful hunt for a vey long time. This pharmacy is just not organised, there are numerous people who are waiting for a long time for their prescriptions. Eventually they find my bag of goodies and hand them over. It feels a longer walk back to the hotel car park. I pay my fee and return to my car. I leave and drive to a Sainsburys where I acquire a birthday cake for my partner and then home.

The tree folk have left for the day leaving behind a giant set of draughts in the garden. Tomorrow they will return. The evening comes around and the family eat and then do birthday cake and presents for my partners birthday. I clear the kitchen and then settle down to watch a football match. A strange game where England thrash Scotland 6-0 and fail to qualify for the euro nations semi finals and the Olympics. My partner and I then watch a couple of episodes of Crossing the Lines before going to bed. I find time to draft the blog, which is probably a bit disjointed as I feel drained now.

Christmas is a coming so make way for present anxiety.

CHEMO II DAY 172

Fight, do it right to do it right relentlessly.

Monday I wake up to find the household ahead of me, this is tree day. A single text message changes all that, the weather is so wet the Arboreco team postpone their day up our trees. Tomorrow will have to be the day instead. So my day starts with toast and morning meds and then my partner and I set about planning the day and making sure that our house guest is okay. There appears to be an ongoing boiler problem so we have no hot water, in light of that my partner goes to her brothers to have a shower.

Well what is a chap to do in these circumstances, there can only be one answer; Christmas cards. As I result I spend all morning and part of the afternoon writing cards. Always interesting to note the thoughts and feelings that run alongside this task. There are moments of not knowing what to put in a card and others flow easily. I have of course got my list form the last five years, which has been amended over that time. The dead of course do not get cards, they are easy, but then there are those who seem to have fallen off the communications radar but not out of the address book. Further are those who have declared their hand by declaring that they just can’t be arsed for what ever reason or have chosen charity over the individual. I just decide to send to everyone in my address book because I am ethically and philosophically lazy. This year poses a unique question, do I send cards to the Scottish branch of the family. In previous years my sister has sent them cards and maintained some sort of contact. As the last of my generation on the London born side of family it probably falls to me to at least make the effort to maintain some sort of link if not for me then for the grandchildren who might want have an interest in the extended family. So that means another dive into my sisters address book.

At this point the boiler guy arrives. I do my best to explain what is going on. He checks what is going on and says “Ah”. He turns down a coffee and gets on with prodding the circuit board in the boiler. I leave him to it and renew my card task. After a few minutes the boiler guy gives me the thumbs up. Apparently having put in a new three way valve there is sometimes enough residual current to trip the really sensitive control boards in the boiler systems. This is so common with our particular boiler that the manufacturer has produced a specific new part to overcome this problem. Basically a capacitor that soaks up the additional current. My boiler man has added the part and tested the system so now the boiler switches on and off as it should.

Before I get back to the card task I check that our houseguest has all she needs and I find myself recommending a couple of books to help while away time. Having checked that she is good as can be I head off to the garden and remove all the things that might impede the tree folk tomorrow. So washing line, bird feeders, bug hotels, squirrel feeders and hanging baskets all get moved and tucked away. Finally I remove the trip hazard of the power lead to the Shed. I return to the Christmas cards and the radio, inevitably more Infinite Monkey Cage, before my partner returns home from greeting the new carer for her mother.

So another evening starts. No rugby, no football, no snooker, its going to be free view Crossing the Lines and some sort of preparation for tomorrow as its my partner’s birthday, and also the day Cycle 6 of chemotherapy ends and the day I need to collect cycles 7,8 and 9 from the hospital pharmacy, which I can only do in the afternoon. There is of course the excitement of the Tesco delivery to come as well. I end my day moving cars to facilitate the tree boys in the morning, then its night meds and off to bed.

CHEMO II DAY 171

Fight, no matter the odds fight.

Sunday I wake up and of course weigh myself. To my great surprise I once again weigh in at 97.3 kilos, that the third week in a row that this has happened. So I have a stable weigh at the moment for which I am thankful. My partner brings me a coffee and tells me that the carer who broke her ankle is being discharged from hospital this morning. So the day starts with finishing off the preparations for her to stay. At the same time I switch the temperamental boiler on to get the house up to the right heat. There are still some small things to do to make sure our house guest will be comfortable. Alongside this is the need to repark the cars and clear the pathway so that people can get in and out. My partner adn I have just finished our chores and sat down to a coffee when the ambulance arrives with our house guest on board. She is accompanied by two crew who clearly have a great deal of experience in moving people in and out of houses. They take one look at our front porch and know they will need the lifting chair.

After a careful and well choreographed entrance we are able to get our guest into one of the recliners and settled in. We chat for a while and then move what needs moving to her room. After feeding her healing scrambled eggs and toast my partner and I go to the garden centre to top our fruit and veg supplies along with a visit to the in house butcher. While there we take a pause and think through some of the things we need to be doing and what our options are. We do this over warm drinks and a scone until we think we have a some options sorted out. With that done we peruse the artificial Christmas tree options. My partner has been very clear that we were not ordering off the internet if we had not seen the tree in the bark, so to speak. There were a large selection of artificial trees, some with snow, some with lights, some with stands, some with out. We took our time as we weigh the options. Firstly we decided on the quality and type of foliage. Of course we knew the height required as we had premeasured. With those decide it was a case of selecting shape and density of the tree. Finally we made our choice, and of course being us we picked quality and the price that went with it. My partner and I loaded it onto a trolley and wheeled it to the checkout, where we found someone to help take it outside to load into the car. I had hoped that it would go across the back seat. No such luck. So finally we manage, in the rain, to get the seats down flat and the box in. We drive home in the rain and leave unloading the tree until we can do it in the dry.

I settle down in the lounge with our quest and chat for a while until I sort out another heater to make sure everyone is able to be warm all the time. My partner cooks us all tea and then its time to get or house guest upstairs to her room and settled in. I clear the kitchen and then catch the tail end of Strictly not being a results show due to one of the contestants being dropped by the professionals in rehearsals and breaking his rib.

The evening drift into TV and eventually evening meds and bed. Tomorrow is going to be full on, as the tree folk are coming to do their work, the boiler man will arrive in the afternoon and I’ve just noticed a kitchen strip light is not functioning. Some where in there Tesco will deliver and we will all begin to getting used to a new household for a couple of weeks. Big day tomorrow.

CHEMO II DAY 170

Fight again, again and again.

Saturday and I wake to a day of ice outside. There is coffee and toast to start the day. I go through my ritual of filling my drugs wallets for the next two weeks. My daily meds taken I start to get the spare room ready for our house guest who may join us today or tomorrow from hospital. I start to get my sports clothes away and then its a case of hoovering the house through . Once again I ring the boiler people and arrange someone to come and check why the boiler is not turning off. While I am at it I get the tree people to confirm they are coming on Monday. Its clearly going to be a busy day. I do all I can to tidy up before I need to rest with a coffee. In my journey to the compost bin to get rid of some old fruit I notice that already there are bulbs poking up in one of the tubs, apparently Spring is here already.

Can Spring really be here already?

I break for coffee and soup with snooker in the background. Its time to do more house pre adn to strip the spare room bed. A bit more rugby and then I pop round to the neighbours to tell them that Monday is going to be a bit noisy as the tree people set about taking our trees out of the back garden. They seemed happy enough. Back home out of the chilly night I return to more rugby.

The evening will be one of shear laziness and relaxation. There is Dr Who and Strictly to see me through adn some other nonsense until the football highlights arrive. If I am feeling the need to be productive I might write my Christmas cards. I have half a mind on tomorrow when there is food shopping to be done and some organising to ensure our busy Monday goes smoothly. So for me its night meds and hopefully a good nights sleep.

Life can be a bit of a bugger so celebrate when you can.

CHEMO II DAYS 168 & 169

Fight, rip out the throats and hearts of that which opposes you.

Thursday the 30th of December. A shit day. One of those days when everything seems to be against a serene and peaceful life. With my partners carer in the hospital with a broken ankle my partner spends a day with her brother trying to find a solution to her mothers twenty hour care. The boiler fails again and that needs to be sorted. My oncology review goes as quickly as usual but ends with my prediction coming true. I am prescribed three more cycles of chemo and a scan in the new year. There is a lot of admin to do around my sisters estate. By the evening everyone is tired and retire early to bed.

Friday starts with difficult thoughts about the day before and decisions to be reviewed and changed. I ring the boiler folk who agree to send an engineer in the afternoon. I get up take my meds and start to try and organise myself as my partner prepares for another difficult day. I get ready for the boiler person to arrive and start to finalise some of the solicitor paper work that needs doing. My partner and her brother work on finding suitable care for their mother and the boiler man turns up early. Eventually a trip to the post office sees the end of the solicitor admin. Later my partner returns. The evening comes around quickly and the tiredness of the past two days catch up with me. I draft a short blog, compact and a reflection of the fatigue of the last two days. I take my meds and go to bed knowing that tomorrow there is an effort needed to prepare the house to possibly receive the injured carer as a house guest for a while. It is going to continue to be a busy and challenging day.

Regaining balance means letting it be enough.

CHEMO II DAY 167

Fight, ice and snow, fight it all.

Wednesday, first morning without the boiler, so I’m not getting up any time soon. I hunker down with coffee, toast and a new poetry book that a friend has sent me. However dead on 9 o’clock I am on the phone ringing the people who installed our heating system pleading for an engineer to come and rescue us. To my great relief they are able to send someone between and 12am and 4pm. With a sense of relief I settle down to read Beyond the Brink is the Beginning, a collection of poems by Richard Wain. The collection is a themed one around hope for the future rooted in faith in nature and interpersonal recognition of each other. I think that’s the message. I read the whole collection and all the notes that come with it. Its a strange mixture of feelings that I am left with. The sentiment is good but it feels naïve to think that somehow nature will lead to a self repaired better world and all we need to do is recognise it and the sameness of each other. I could not help feeling that the the tipping point for humanity has come and gone. It made me aware of how powerful the natural processes that drive humans are and that they are beyond the real consciousness. Its like the old example of earth worms. They are crucial to the ability to create viable soil and therefore crucial to the food production for humans, however the worms just do what they do without any idea or conscious appreciation of what they are doing in relation to the whole system. So it is with humans. True we have some appreciation of some of our process and relationship with nature, but I would contend we are still unaware of the fundamentals to the extent that humans can adapt quickly enough. An interesting start to the day and not yet out of bed.

An interesting read, I think

Finally I get and choose my clothes for a cold house. As a result I drag out my super thick jumper and layer up. Looking like an Inuit I go to the Shed to retrieve the electric fan heaters that are stored there.

The layered up me ready to wait out the cold.

The garden is frost covered and looks attractive but would of course kill me if I linger too long. Back in the house I set the up to warm the working members of the household while we all wait for the engineer to arrive. I go to the sunny lounge and start to draft the blog before reading the stricken boiler cupboard for easy access by the eagerly awaited engineer. Lunchtime arrives so as I settle down I become aware that there is a tense telephone call going on. It turns out that my partners carer has fallen over and broken her foot. There is a short period as everyone making decisions on what is best to do. The upshot is my partner and eldest daughter are whisked away by my sisters brother as they head off to deal with the situation. I remain at home waiting for the boiler engineer to arrive.

So while I wait I check the mail and find things that need to be dealt. So I send photos of letters to the solicitors and try to understand some advice that has been provided. In the end I send more emails to the solicitors in essence asking idiot questions and declaring my ignorance. While I am doing this admin the engineer turns and starts to give my system the once over. It appears to work. Sods law really, one moment not working and then being fine when the engineer looks at it. Like going to the doctor to find the pain has gone.

My partner rings and tells me that her mothers carer has been attended by a large number of paramedics and that she is going to hospital. My partner and her brother have decide to stay with their mother tonight, while my eldest daughter goes to the hospital with the carer. I prepare to travel with a bag of clothes for my partner but my niece has agreed to pick them up and take them over along with her fathers requirements. She picks them up and I settle down to keep a watching brief on what is going on by messaging my eldest at the hospital. My youngest daughter rings me and I update her. I take the opportunity to order an Indian take away so that I am fed if I need to go anywhere. The evening is full of messages and conversations. My eldest daughter is being a star at the hospital as she hangs on for the carer to be taken up on the ward once her fracture has been plastered or booted. I keep checking the boiler and the radiators to ensure the boiler is still working. The temperature of the house is taking a long time to recover as the temperature outside is dropping rapidly to minus 2. Inevitably everyone enters the waiting phase as we wait in our various situations doing what we can and seeing what happens next.

The evening goes on in this fashion for sometime. I am sitting at the home base beginning to prepare for my oncology review tomorrow. It a phone appointment so I need to be clear about what it is I want to ask and discuss. I’m expecting the arithmetic to be good enough for me to be given three more cycles of chemo and perhaps be seen in person in the new year. This would at least give me a clear run at Christmas. I need to get back to training at some point but I noticed the display on the row has gone blank again so there is a battery juggle to be done. For the moment I watch Shetland and await news from the hospital. One o’clock rolls round and my eldest daughter is still at the hospital with the carer as she goes for yet another x-ray. Its going to be a long night for my eldest and the rest of us. I take my night meds and settle down to wait for my eldest daughter.

Keeping warm can be a tricky challenge.

CHEMO II DAY 166

Fight and win some and lose some, but fight.

Tuesday, I wake to my partner having gone to work. Today I decide to make an effort to throw off this cold. So I breakfast, take my meds and write a to do list: The result is that I achieve the following: 1. I get the meters read and sent, 2. I drain the water butt, 3. The squirrel feeder gets filled, 4. the garden camera gets down loaded, 5. the kitchen is cleared, 6. I get all my washing away, 7. all the house bins get emptied, 8. The dustbin gets put out, 9. the outside security light gets checked, 10. the Tesco order get taken in.

Its now the evening when my partner and I drink a brandy because the bloody boiler has chosen the coldest night of the year so far to stop working. I balance this against getting a lovely letter from a friend, receiving the poetry book they have sent me and having an unexpected call with a friend. Mostly a good day then, but tomorrows to do list writes itself with 1. Fix Boiler at the top. So its nights meds for me and bed. I was contemplating another Lemsip but it probably would not mix well with brandy and my meds. I did read the packaging information on the Lemsip to see if it mentioned alcohol specifically but it does not, what it does say is that its not suitable for people with enlarged prostates. Now the question is does a cancerous prostate count as an enlarged one or not. Bit late now to think about that, getting rid of my cold was the priority, but tonight I take my night meds with hot water.

And the bloody boiler packs up. Other means of warmth are available.

CHEMO II DAY 165

Fight, just get on with it and fight.

Monday and I wake up once again in the spare room and tentatively check how I am. I think I am getting better. My partner brings me coffee and toast and I ease myself into the day. I take my morning meds and then I start to write letters on my laptop. Its too soon to go to the Shed to write letters. I have a morning Lemsip and then start to get myself ready to drive my partner to her afternoon hospital appointment. Before we go we have bacon sandwiches.

I am not sure how I feel as I get ready to drive but once I get settled behind the wheel I am okay. We arrive at the community care centre and wait in the reception area. My partner gets called and Listen to another episode of the Infinite Monkey Cage. My partner soon returns and I drive us home. The letters I wrote this morning need printing off before I am able to get to the post office to send them. When I do get there the post box is nearly full. At this time of year the small box tends to get fully stuffed. I go home and complete the contents page for a poetry collection and I also edit the bio and the dedication. Tea time rolls round and its time for another Lemsip.

The evening is all TV before I take my evening meds and wash them down with my final Lemsip of the day. I am taking myself out of quarantine tonight so I shall abandon the spare room. I hope I have made the right decision but already I have a growing to do list waiting for me. Today has been a minimal day but my energy reserves have all gone. I need to pace myself to recover properly.

Time to relax

CHEMO II DAY 164

Fight, even when Lemsip is required

Sunday and once again I wake up in the spare room as I continue to quarantine myself with my crap cold. I’m down to my last Lemsip. I do wake up about 9am and like an automata get myself on the scales for my Sunday weigh in. I am 97.3 kilos, exactly the same as last week, which is pleasing as I have not been able to train this as a result of my York trip and this bloody cold. On the cold front, I detect improvement, my nose is not quite as runny, I seem to have stopped sneezing and the Lemsip appears to be bringing relief. My partner brings me coffee and toast and like a trooper brings me more Lemsip from the shop. I take my morning meds washed down with Lemsip and settle down to see how I feel in the next couple of hours.

I spend my morning changing the Tesco order in anticipation of taking my partner to the hospital tomorrow for a quick appointment in the afternoon. It would be Sod’s law for Tesco to turn up while we were out so a Tuesday slot seem a sagacious choice. I spend time checking to see if I can find Christmas and birthday ideas on the internet but to no avail. I still feel rough but I am beginning to feel guilty about locking myself away and steadfastly staying in bed. I take this as a good sign and wonder about just how compromised my immune system is given my cancer and the chemo and try to gauge what is a reasonable recover time for me. My partner is going to see her brother this afternoon so I might risk a bowl of soup and a watch of a rugby match on the TV in the lounge. I have a growing to do list, including writing letters to several people but at the moment they would be just infection risks so I hold off at the moment. I have my next oncology review in four days and I am thinking about what I want to say and share adn whether they will just look at the arithmetic and sign me up for another three month stretch on Chemo. My guess is that this is what they will do and then call me in for a face to face annual review in March sometime unless the bloods monitoring goes awry or I get further symptoms. I guess that is all they can offer at the moment as from their perspective I’m doing as well as can be expected. My basic issue is energy. The chemo side effects are mostly fatigue, and as people point out to me I am 75 so should expect to slow down a bit, but that is not how it plays out in my head. I wonder sometimes if there are drugs that would give me a lift, a quick snort of cocaine perhaps or some “uppers” but I have never been into that as I never liked the idea of being out of control, certainly now with a body full of meds it would seem a foolish adventure. So I will settle for a dish of soup and an afternoon rugby match and then I will reassess how I am.

I do have one question; why do lips dry and crack when you have a cold. I am regularly using Vaseline “lip therapy” at the moment. It one of those addition irritations that goes with the cold. Just one of those little mysteries I guess.

My plan for soup and rugby goes okay so I stay in the lounge in my sofa spot and see the evening through on TV. A friend unexpectedly calls me whilst traveling through Leicester on her way to Leamington. I think she said she was visiting a dog breeder, but I may have misunderstood. It is a short call but a nice surprise. By 10:30 I am done, spoonless and take my self off to the spare room again to finish drafting the blog, taking my meds and washing them down with a final Lemsip of the day. My body chooses now to have a hot flush, so I sit it out before I try to settle down and sleep. I am tired but I am getting hints that I am starting to recover from my cold, it just feels like its going to take a while to recover from this one.

Pace is an acquired skill of the experienced.

CHEMO II DAY 163

Fight double hard

Saturday I wake in the spare room with my heavy cold for company and I feel absolutely crap. My blood results came in last night, they are okay. The raised potassium is due to me hitting the chocolate hard over the last week or so. No more chocolate or ice cream. The internet tells me I can have jelly beans in moderation and of course fruit.

PSA falls again, chocolate raises potassium. The rest are okay. Arithmetic is good.

I quarantine myself in the spare room, take to my bed and do Lemsip and toast before spending all day napping, Lemsiping, and watching the laptop. Six o’clock I eat and return to my laptop in bed. That’s me for the evening till night meds, Lemsip and hopefully sleep. That’s me done, I’ve dug in and will wait it out now. Good night.

At least the weather is sunny