CHEMO II DAY 362

Fight horizontal or vertical, whatever you can manage.

Tuesday and I wake up in the spare bed as I feared I would not sleep last night. It was an okay night. My partner goes off to work and I change beds and take my vitals, all good, before getting up for breakfast. Immediately I can feel my cystitis like symptoms starting and immediately take my meds and another cystopurin and retreat to the recliner. To keep myself busy I send the link to my to new books to friends and family and toy with the idea of sending them to Radio 2, but as yet I have lacked the courage not wanting any contact while I am feeling the way I am. With that done I record to new YouTube videos to get my new poetry collections “out there”. They will only reach a hand full of people but that is life.

My videos go live at noon and so I include them here. I think I have included at least one of these in printed format in the blog before. As I wait for noon I clear the kitchen in anticipation of the Tesco delivery between 2 and 3pm today and then retreat to the recliner and down some co-codamol as my cystitis like symptoms increase during the morning. My intention is to sit tight for as long as possible and just try to relax, read and stay still.

In the afternoon my eldest daughter goes for a walk and of course Tesco deliver, so I hump the crates in and then squirrel all of the goodies away. I have run out of spoons (energy) and take to the recliner again as I attempt to rest. I spend the afternoon trying to keep my head busy and watching some random TV including the new Star Wars series The Acolyte. Just as my partner returns from work a friend rings and we have a chat about how we are. Once again her employer is failing to understand the implications of having long COVID, in particular the difference between travel for work purposes and private domestic trips. It is good to hear from her and to talk to someone outside the household. Tea is eaten not long afterwards and I return to drafting the blog. Apart from the Great British Sewing Bee there is very little I want to watch so I expect that I shall return to S.W.A.T as a means of escape before I get to night meds time and the hope that I can get a good nights sleep.

Always take the time to reflect.