Sunday and I wake up having had a good night with no acid piss, it makes such a difference. I have no explanation why I am good at night and get worse during the day. My partner brings me hot water and I take my vitals, all good, and then say farewell to my partner and eldest daughter as they go out to shop for a new laptop. I fix a simple breakfast and then I decide that as I am feeling a bit better than I have done to try and get the patio furniture up and running. This means unpacking and filling the patio umbrella base and filling the sections with water. I set to and gradually get the job done.

The next big job is to fill the Hippo bag and get rid of all the rubbish out of the garden then the place will start to look good for the summer nights and all that sunshine we are expecting one weekend sometime. However after my patio efforts I am pretty much spoonless. With one last effort I recycle the packaging that is laying around and take a couple of pictures of the front of the house. It feels like this has been an important project to have undertaken.

Having done my major chore for the day I settle down and watch the women’s rugby semi finals. Two excellent games to tame me into the early evening and tea. Between semi finals I start to draft the blog and and begin to plan the next YouTube videos to put the new poetry collections out there in cyber space. Apparently I could use marketing tools but I am disinclined to do that, I’m not that interested in a commercial adventure. One thing I have considered is sending some copies off to see if anyone would review them. On the other hand I probably would not read them.

The evening rolls round and I eat with my partner before we settle down to watch TV together. Unfortunately my rock Uluru decided to chip into my evening so after what had been a symptom free day I end up back in pain and just working my way to my night meds and bed again. It was all going so well!