CHEMO II DAY 225

Fight, all night and day!

Its jab Friday so I am awake early and going through my cyber routine early. There in my emails I find the final version of my book cover. I still do not really believe that this is going to happen. The small change that I asked for is there. The inclusion of “So Far” is, I think, me trying to instil hope and to carry the fight on. However I am happy with it and reply to the team telling them that this is okay. I will not hear back till at least early evening given the time difference.

The final book cover

I have no time for breakfast only time to wash down my morning meds and fish out a mask to wear in the GP surgery. The stroll down to the GPs was in bright sunshine and it was noticeable how many people said good morning. Clearly there is a sunshine effect going on, either that or I look like I am likely to kill people. The GP surgery is half full and no one else but me is wearing a mask. Their funeral is what I think. I am called in quickly to the usual nurse, who is very quick, efficient and best of all painless. Her with her skill and me with my good veins are a good team. She notes that the surgery is monitoring my apixaban so she takes double the usual amount. I am out in the twinkling of an eye, taking my mask off as I go. My first thought is to see if the village café is open in order to have breakfast, sadly it is not so I get a paper and head for home, where I whip up and egg sandwich and a fresh herb tea. My run of form on the crosswords holds up and I dash through my usual two and then pause. The meters get read and Mondays Tesco order gets booked and partially done, busy me, I wonder what I am avoiding.

I retreat to the bedroom where I instruct Alexa to play me meditation music while I do my vitals. They come out all good so the first part of todays arithmetic is a positive. I find a home on the book shelves for my Penguin Modern Poets collection and then do the recycling and clear the kitchen. Time then for lunch and a bit of a breather. As I sit sipping soup I continue to watch Ashoka, another Star Wars spin off. By the end of the week I will have done the Mandalorian, Boba Fett and Ashoka. I’m beginning to believe that all the technology actually exists but I draw the line at star whales. After a bit of a binge watch I make the effort and go into the garden and refill the bird and squirrel feeders, I also re-site the garden camera as a hole has appeared at the front of one of the sheds. We have either got mice, miniature badgers or, as I think more likely, rats. With the wild life catered for I get into my training gear and head for the garage to train for half an hour. I try to start out a bit speedier than of late and then keep it going for as long as I can. At the end of the session I am pleased as I have cracked the 6 kilometre mark and he 400+ calories goal. This is a “Go me” moment.

6+ kilometres and 400+ calories, Go me! That’s more like it.

Back in the lounge I record my session and sit for a while recovering adn checking my fitness tracker. I’ve got 173 fitness points, the average required to live longer is 100, so I’m pleased again, more arithmetic that’s in the right direction for survival for longer. Once out of my training gear and into my “slob about” ensemble I recline on the sofa and draft the blog. The is food to eat, a football match to watch, a publishing website to monitor and the wait for my blood results to do yet, Jab Fridays are always long and full of anxiety. To me relief there was no blood in my urine after training, and if that stays the same it will be a good day.

By late night there is no sign of my book but have now got a Kindle Direct Account, and payment and tax arrangements in place, it goes with the account number. All I can do is wait for my book to appear either on Amazon or on my “cyber account book shelf”. I doubt its going to happen tonight and as its Friday I very much doubt I’ll see anything until Monday. So I drink alcohol free rum and cokes, down my night meds, watch the final episode of Ashoka and wait for my bloods to come through. All I want to know is my PSA and my eGFR and then I shall head for bed.

My blood results come in and I caste them up. I am astounded everything is in the normal range and my PSA has dropped again to 1. I’ve never had a set of bloods that have been so normal. Like I say I am astounded, but go me. This is my incentive to continue to train and fight. The arithmetic is good.

Oh universe that has such stars in it,

CHEMO 11 DAY 224

Fight until all the poetry is done.

Thursday I wake with a slightly off colour gut, the outcome of yesterdays very lovely meal and a brandy. However I have time to run through my cyber routines and to check my vitals (all good), and, as I have my laptop at hand from last night’s streaming in bed, I check my email that contains my first mock ups of my book cover. These are exciting times but I am approaching them with some anxiety as I am a novice at all this. I’m never quite sure if this is how it is supposed to be or I am being rooked in some way.

I down load the mock ups and consider them and try to come to a decision. In the end I select one but decide for the sub tittle of the collection to be included on the front cover. I email the team with my observations and requests. I include my mock ups below for interest but am not sure what the actual end product is going to look like.

My preference is for Mock up 1 with some minor additions. As I say seeing these has made me feel quite weird at the thought the poetry project is actually happen after all these years. I am itchy now to see this through so I can get on with my further collections.

I eventually get up and make my breakfast and settle down to plan the day and see what I wanted to do. I had not been doing this for long when I am surprised by the postman bearing a parcel for me. He explains I have to sign for it as its a special delivery. Taking the shoe boxed size parcel from him I am taken aback by the weight of it. This parcel is well taped and it takes time to get through the gaffer tape and find the contents. On opening the box he content is revealed, it is the complete set of the first Penguin Modern Poets series, all 27 volumes. I am truly surprised that it has arrived so quickly and very happy to have them. These volumes were big in my life between when I was a late teenager through my early twenties. I eagerly look at them and note the familiar names and those that I had forgotten or never known.

Such an amazing array of poets of my youth

By lunchtime I have finished watching The Book of Boba Fett and over lunch I find myself watching the COVID enquiry in Scotland. The Scottish first minister is on the spot and is actually doing quite well, even explaining how he was able to suddenly find old WhatsApp messages. What is clear is that politicians have more phones than fingers. It also becomes clear that decision making at times is dependant on which side the coin comes down when public compliance is at stake. Especially when your country gets into a football tournament for the first time in twenty years.

The evening hoves into view as my partner finishes work and prepares for her singing lesson this evening. I settle down to read my new old poetry books and watch some TV before an early night again. Out of the blue the final draft of the book arrives and I set about going through it for one last time. I am content and email the team to tell them. I have rested today although I’ve not got out, that will change tomorrow when I have to be at the GP at 9am for a blood test. Tomorrow is one of those blood Fridays where I give blood in the morning and then occupy myself all day until midnight when my results come through. They are anxious days when new arithmetic becomes available upon which my well being strongly depends on. My last few days seem to have been more normal but underlying my days my fear of my cancer spreading continues to invade my being and make me hypervigilant, especially about the state of my gut and bladder. For now its drink a lot of water and then my night time chemo meds and bed. Before I can do this I get a call from the team in America and spend ages sorting out an Amazon KPD account that will enable me to publish on Amazon. The guy at the other end says he has set me up an account and we agree a password, there is lots of numbers and shit that goes on, I almost pull out, but I finish the call. According to the guy by four o’clock tomorrow my book should be available on the Amazon platform. I’m not sure what 4 o’clock it is, ours or Americas. I just have to sit tight and contain my anxieties for twenty four hours or so. Finally I down my meds and go to bed.

Spring is in the air and new ones arrive.

CHEMO II DAY 223

Fight, winter into spring.

Wednesday and I wake to my usual routine of cyber litter, messages and news feed before checking my vitals, once again the arithmetic is good. I get up to make breakfast having got into my training clothes. I am all good intentions this morning as I am dining out this evening to celebrate my partner and my Civil Partnership anniversary. A number of things highjack me during the morning, some of it is just puttering other more self indulgent. I discover that there are 27 volumes of the original Penguin Modern Poets. This is the series I rummage through to find the poem that I put in the blog yesterday and had stayed with me for more than 50 years. I start to buy the odd editions that I do not have and then bingo there is a complete set on ebay. I have no resistance to this. These are all the poets of my youth who were thought of as “Modern”, the poets of my generation and these volumes were meant to make poetry available to the wider populations. Of course some have survived, like Steve Smith, McGough, Ferlinghetti, Ginsberg, William Carlos Williams and several others but others have fallen away but were important in the sixties and seventies. It is poetry that calls to me and which I recognise. Having them all is like finding long lost friends, a reunion of my time gone by.

I fritter time trying to open a pair of watch cuff links but I fail so reject them from tonight’s smart dining outfit. The shower head gets cleaned, I play loo roll fairy and several other boring maintenance tasks get done. Finally I sit and start to draft the blog while my Fitbit recharges. So with earbuds in I finally head for the garage to train, to be followed by some advance preening. In the midst of this comes the news that my new grandson is now teething! Spring has a different edge to it this year. The session on the rower is hard but I am getting a bit fitter. I still cannot get to my usual standard of 6 kilometres but am closer and I burnt a few more calories.

Just a 134 metres short of my standard, I am getting there.

Once out of the garage I record my session and have a shower. I a burst of energy I dress and go to the post of office to send a parcel of goodies to my youngest daughter and then walk down to the village chemist to buy COVID tests as my eldest daughter is not feeling well. Once home its crossword time, which I flash through once again, that’s two days on the trot I not heed the help of google. So I slide into the early evening and dress up to go out to dinner with my partner as we celebrate the fourth anniversary of being a civil partnership.

The meal is delicious and the evening passes quickly so it does not feel like long before we are home. We find our eldest daughter in the lounge watching TV feeling feel sorry for her self and obviously poorly. We retreat to bed and watch the last episode of After the Flood on my laptop before I finish the blog and take my night meds. Its been a full day so tomorrow I rest, at the gym.

Spring is arriving

CHEMO II DAY 222

Fight, almightily.

Tuesday and I wake to my partner having gone to work so I indulge in watching a selection of Mock The Week “things you wouldn’t hear…”. I finally drag myself away from the phone having checked my messages and cyber litter. Still no book cover yet. I get up, take my morning meds and get myself down to the village shop for a paper and then onto the village café for a bacon and sausage baguette washed down with a hot chocolate. I sit and do the crosswords, today I’m on fire and do not need to google anything. Its a small thing but gives a crumb of comfort that I’m still functioning on some level. On returning home I put the bins outside and settle down to, nothing.

In my state of “nothing” I fall back on reading and start my re-read of The Hitchhikers Guide to the Galaxy. I had forgotten just how good it is and fell right back into the joys of Pan Galactic Gargle Blaster and the immortal words “Don’t Panic”. After a while I go the laptop and star to write a poem. As I went to sleep last night I kept thinking about a poem that I remembered from my youth. It was a poem that contained reference to consonance and assonance not being able to express the experience of a prisoner getting shanked in a prison yard. In my head I had started to compose the poem, knowing that the poem I remembered was both right and wrong in some way. I know I read in the Penguin Modern Poet series published in the late sixties. I read the poem when I was 20 and it has stayed with me ever since, but I can’t remember who wrote it and which edition of the Penguin series it was in.

I draft my poem, eat tea and continue to write the poem and still I am nagged by the remembered poem and my inability to know who wrote it. I finish my verses and then start to draft the blog but I am nagged by not knowing who the poet was who stuck stuff in my head when I was 20. I retrieve my Penguin Modern Poets volumes from my poetry shelves and go through them page by page and then bingo I find the poem. Its a William Wantling poem called Poetry. On reading it I am taken aback by the similarities of the two poems in terms of their basic theme. I put both of them here for anyone who wants to read them.

This is the 55 year old book that has held the poem in my head all those years ago.
I am distressed,
By my search,
For a poem once read, 
Indelible on my mind.
It spoke of the redundancy,
Of consonance and assonance.
A Penguin Modern series, 
Of the sixties and seventies. 
A man who wrote of prison, 
The brutality of survival
And the way the blood flowed 
When a man got shanked.
For him that was poetry,
He was wrong, 
For years in the heads 
Of the violent, 
The killers,
The outcasts
There was only fear,
Shame and loss.
When space allowed 
There was wit and desire,
To be better.
I was never a therapist 
More an operational moral philosopher,
Just trying to find out 
How to be a good person.
But the verses were always lodged, 
Ticking away in my mind
That there is something,
Beyond the structure 
And the academic noun.
A depth beyond 
The contrivances and the intricacies. 
I’m running out of time
And have no space for the fripperies,
Or linguistic baubles,
If I am to find 
What lays at the heart 
Of the words that move
The world of being. 
My dandelion clock
Sheds itself
As the wind blows,
And still I seek
The lost poem
And the ones to come. 

									365 23-01-24.
    
 

So today has been a good day, somehow there has been a connection over 55 years and the power of poetry is affirmed. My instinct to write seems to have been vindicated. What I find interesting is that Wantling and I seem to have found the same difficulty with poetry. I take my night meds, washed down with a 0% rum and coke and go to bed feeling relieved in a strange affirming way.

CHEMO 11 DAY 221

Fight, right, fight dirty, just fight.

Monday and I wake feeling quiet refreshed and laid back. My partner brings me my first hot water of the day and I check my cyber gadget for messages, mail and litter. I then check the BBC news and weather forecast, watch a couple of amusing slots on my news feed and take my vitals. Having dawdled a bit I pick up a message from a friend with a picture, her sewage pipe has backed up and overflowed into the garden. That is, as she pointed out a truly crap way to start the day. I get up feeling lucky and tuck into honied toast and herbal tea. Its then that I realise that some thing is missing in my life. My green house isn’t there in the garden! Bloody storm Isha has nicked my greenhouse!

I finish my breakfast, pull on my snow boots and slug down the garden. And there is my green house laying on its side hiding behind the Shed. I am relieved, I had fantasies of it going Dorothy like on a tornado to some far off garden and wreaking havoc on the way. It took two hours or more to clear away the scatter crap and to bring the green house, who is now called Dorothy after her little windy trip, back to the vertical and standing in its allotted space. Dorothy has a broken joint that I mend with super glue and then I contemplate how to protect poor Dorothy from further weather driven escapades. Storm Jocelyn is on the way I find some tent pegs and drive several in around the frame of Dorothy and lash her to them, like Ulysses lashed to a mast to avoid running aground after hearing the Sirens sing. With Dorothy firmly anchored I replace her internal shelves and bits and bobs, finally zipping her up against the coming inclement weather. My efforts have exhausted me and I am glad of the bacon sandwich my partner makes me.

I have brought the garden camera in and start to review its contents. Its all squirrels and wood pidgeons except the section where it has captured the team felling our trees before Christmas, it takes a long time to go through and it has made me forget that I was going to put a crockpot meal on for tonight. I finish up the camera and go to the kitchen and proceed to make my famous one pot, a chicken and chorizo dish flavoured with herbs and smoky pimento. It is a tasty winter meal especially when made with red wine and a dash of brandy. With the stew bubbling nicely, I clear the kitchen and move the car off the drive ready for the Tesco delivery.

As the stew bubbles I start to draft the blog in anticipation of both the food and the Tesco delivery. With those out of the way I can get on with BBC 2’s quiz night, or as I think of it, revealing my ignorance night. In fairness I get some of the general knowledge on Mastermind, less on University Challenge but any correct answer on Just Connect raises a whoop of joy. That does not happen often, perhaps once a series. My aim is for another early night and a tomorrow when I can train and get out and about a bit, even if it is only to the shop for a paper and the café for breakfast. I take my night chemo meds and go to bed.

CHEMO II DAY 220

Fight, even if just a little.

Sunday and I wake after a night of terrible nightmare. I dreamt of the house being invaded by men demanding that they do work on the house, a real bunch of vagabond brigands. I stood up to them adn told them to fuck off and threw them out and off the property but not before they had damaged the front door and porch. Eventually they left in a trotting cart. It left me distressed and I woke shaken. I think it was a cancer dream, the symbolism of being invaded and being made fearful all felt very cancerous to me. I got up cleared the kitchen put out the recycling, half checking the door and porch as I did so, and then retuned to bed with warm drinks for my partner and I.

After sharing my nightmare we got up for breakfast and face timed our youngest daughter. My partner went to the gym, my eldest daughter to a friends to work. I spent time reading a poem a member of the poetry stanza has sent me and then replying to his accompanying email. Alone in the house I start an early draft of the blog as I gather up my courage to go to the garage to train, spurred on by the horrific fact that I weighed in at 100 kilos this morning. I am appalled at myself, that I have let my fear do this to me.

I go to the garage and strap myself into the rower. I set the session for thirty minutes, set my activity monitor going and set off. I am working at about 75% of my capacity, its hard but I push through. I can hear the wind howling outside as the latest storm comes in. I make the end of the session and I am just glad to get there.

A 75% session after a 16 day break, that will have to do.

Having finished the session I record it in my journal and then head for the garden where I wrestle the cover back on the garden swing seat as the wind whips up. Back indoors I change out of my training kit and get a drink and a sandwich after going to the bathroom and being relieved that I have not passed blood. I settle into watching a rugby match as the house around me rattles in the ever increasing wind. My partner has retuned from the gym and quietly stitches together the grandson’s cardigan as I continue to draft the blog to the background of rugby. The evening meal is taken as a family and then we watch Vera while the storm intensified, rattling the house. I take my meds, finish off the blog and go to my bed hoping that the remaining items required to see my book come into being arrive soon.

Continue to keep getting up.

CHEMO II DAY 219

Fight, and digging in deep.

Saturday and I wake after a reasonable nights sleep. Its chilly and my partner and I sip hot drinks and chat until we have a plan for the day. Bacon sandwiches for breakfast before some serious puttering to get the house straight. By lunchtime I am ready for the afternoons poetry stanza so I indulge in a football match. With the game almost over I settle in front of the PC and sign into the poetry stanza. For three hours I listen to poetry being read, discussed and explained and take my turn to make observations and share my ideas. This time I had not offered one of my own poems but I had shared a visual poem before the meeting which people said they liked and found funny, which I am not sure I intended it to be.

After the stanza I watch rugby, eat tea and search for an evening entertainment aware that I am becoming the owner of a headache. It ends in paracetamol, night meds and a late bed time.

CHEMO II DAY 218

Another Friday arrives, I wake early this morning and check my cyber messages and litter before checking my vitals (all good) and then doing the Tesco order for Monday. Once up I make breakfast and settle down for the mornings task of proof reading the final draft of the poetry collection. Its a slow and painful task, I keep tripping over my dyslexia and the slowing side effects of my chemo. I finally finish after lunch time and put all my feedback into a document that I send to the team in Florida.

I am watching the World Indoor Bowls championships when I get an email from the boo project team ask when they can ring me to discuss the next phase. While I am trying to work out the time difference I get a call from the commercial branch of the team who talk me through the details of ISBN numbers and book formats. Of course there is an additional cost, just new there would be, but at the end I am expecting a handful of copies at some point and for it to be available on Amazon at some point in the near future although I have yet to see the final cover. As far as I am concerned I have done all I can and just want to see the final product now. Depending on how it looks will depend on whether I use Amazon again. As usual I have a feeling that I am being ripped off, but we shall see.

With the business done I return to the bowls but Amazon deliver the folders I have been waiting for so I set about printing out the poems that have been submitted for Saturdays poetry stanza meeting. The evening arrives and so does the decision to eat take away while watching a rugby match. It ends and I draft the blog with the news on in the background spilling doom and gloom into the room. I’m tired like the rest of the household so I shall wash my night meds down with alcohol free rum and coke and have an early night, perhaps listen to some more Clive James.

I guess turning down the volume is an answer.

CHEMO II DAY 217

Fight, slow and hard.

Thursday and I wake after a reasonable nights sleep, but fall back to sleep again. When I do finally wake up its mid morning. I quickly check my cyber stuff, measure my vitals and get up. A simple breakfast and then some gentle puttering. Annoyingly I find I have a headache so I decide on radical self care. I plug in my ear buds and listen to Clive James’s Cultural Amnesia, a book of reflections on the cultural influences on him.

I recline, plug in my buds, put on my I Am Out hat and settle into the pleasure of being read to by the author. And there I stayed, letting myself be educated interrupted only once to eat beans on toast and then return to the listening.

Tune in and drop out. The joy of being read to.

So that’s how I spend my day until I am lured to the world indoor bowling and watch a couple old fat white blokes slog it out over two sets and a tie breaker. Its only a matter of time before some one complains of lack of inclusion, under representation and all the other agendas that are around. It could of course be upgraded to have a wider appeal. Multi coloured balls, heavy music walk on tunes, more adventurous game wear and some bad person behaviour to incite the crowd into partisan chanting and igniting flares. Any way the evening sidles up and I start the blog and look forward to pasta for tea and an evening of bugger all.

I suppose it is a legitimate question to ask if this is a good way to spend a day given my condition. Aught I not be doing something uplifting, making memories or doing something “amazing” with one of my limited stock of days. To be honest I can’t be arsed on some days, have I not made enough memories, done enough to have a day off occasionally? So, today I put down to indulgence in idleness. I will round it off with chemo drugs washed down with an alcohol free rum and coke. I of course have snuck in a couple of things that are not idle like downloading the poems for Saturday’s poetry stanza and acquiring some odds and ends from Amazon.

STOP PRESS: My final draft of the poetry collection has arrived. I know what I will be doing tomorrow now for sure.

But there is still tomorrow and tomorrow and tomorrow

CHEMO II DAY 216

Fight and fight and fight

Wednesday and I wake to a cold day and appointment with the dentist. There is is time to dress and take my morning meds, check my vitals (still all good) and wrap up warm for the walk to the dentist. To be honest I am not feeling great and I am hoping that I will not be waiting long to get in. While waiting I read some of the poems that have been shared prior to next Saturday’s poetry stanza meeting.

I get called in and greeted by my smiley dentist who looks into my mouth and decides I need an anaesthetic injection. So I sit for what seems no time at all before the dentist is drilling out the temporary cover for my tooth. There follows minutes of cleaning, fitting adn adjusting before the crown is finally glued into position. I make my way to reception where my now numb lips have difficulty forming words, so I silently press the buttons that make the dentist much richer and head off home. On my way home I pick up a paper and soft iced buns.

Once home I settle down to do the crossword puzzles and sip hot water while my lips return to their normal state. Having not eaten I am eager to get lunch time when I can carefully sip soup and dunk bread. I am still not feeling that chipper but I get my washing in and again settle down to write a letter. I do not know if it is a side effect of the meds but it is taking me longer to write letters recently. By the time I am done the washing is ready to be hung up before I wrap myself up warm and go over to the post office to post my letter.

By the time I return and got back to the sofa I am running out of spoons so indulge in watching the world indoor bowls on TV. This is what I am doing when my partner returns from seeing her mother. We slide into he evening with pizza and a light content film. At the end of the fluffy film there is the final throes of a cup match to watch while I draft the blog. With that done I make a small non alcohol rum and coke, take my chemo and go to bed to listen to an audio book. Another day where the mundane masks the dark waters below. Tomorrow is another day.

Stay warm and take time to listen to the sound of fire.