CHEMO II DAY 179

Fight, even on jab days give it a go.

Monday , or more precisely Jab Monday. As ever I have chosen to go early for my 28 day jab. A bleary eyed and quite timorous me gets dressed and head for the GP clinic. I have preloaded with my morning meds and a dose of paracetamol to fight the side effects. Once masked up and in the GP surgery I go to sign in but the screen is not working, fortunately the receptionist recognises me and books me. I wait until called by a nurse I do not recognise. Following her into the clinic room I wonder if I need to have the “lumpy stomach side effect” conversation. In the end I deicide not to, I’m not sure why, I think I just want to get in and out as quickly as possible. She injects me and tells me the system is not up for my next date and that I will have to book it nearer the time.

I leave ripping the mask off my face as soon as I can and head for home. On a good day I might have gone to get a paper but today I just want to be home . Once home I have hot water and my partner makes me toast. I spend a lot of time from then on bending my credit card to finish my Christmas shopping. I am almost done when the garden guy turns up to do the regular tidying. As everyone else is either resting a broken limb or at work its down to me to make him coffee and pay him. We chat for a while, he’s a lovely bloke but can chat for ever, as we chat I keep noticing things in the garden that need to be done so I set to and start doing stuff as well. In the end I spend a good two hours moving things around and filling feeders. I end by draining the water butt again to ensure my gutters can cope in the coming wet weeks. It feels like its been productive time.

On my return to the lounge I find post and a voice message. The plumber has rung back and left a message. I immediately ring him and arrange a day for him to come and look at the defunct shower mixer. My faith in plumbers is renewed. In the post is a card from my cousin in Scotland with note inside acknowledging my letter to them. They have just moved and will contact me in the new year to help with their side of the family tree. While I am doing life admin I write a brief letter to the people who have sent my sister a Christmas card. I explain her death and hope they remember her with fondness. Before I know it I am skipping to the post office to send my letter and to buy our guest more dark chocolate for its potassium content. On my return I start to read Pooh and the Philosophers, a present from my book gifting friend.

A delightful book so far

I take a nap, I know I take a nap because I wake myself up snoring and its dark outside. I drift in and out of sleep as I feel my injection site getting sore as time goes on. This is how it happens, it will get worse before it gets better and will last a couple of days along with acute tiredness and a lack of motivation to do anything. Then three things happen all at once. Tea is cooked and served by my partner, an email from the solicitors raises real issues over the estate and Tesco deliver. Its a juggle but of course the food gets devoured, the new food gets squirrelled away and the there is a flurry of WhatsApp messages as things get sorted, or sort of sorted. By the time early evening comes round I am beyond much other than watching TV, taking my night meds enhanced by more paracetamol. I look at my dairy and I am relieved there is nothing in it, I will need a free day to recover from my jab and regain some balance. At least I am done with the jabs now until 2024.

True for people too.

CHEMO II DAY 178

Fight, spoon by spoon.

Sunday and I wake to find it pouring with rain so I take my time getting up. I check my vitals first before breakfasting and then getting ready to go and find a Christmas turkey. I drive my partner to our local garden centre in pouring rain where we head for the in house butcher. We select what we require for Christmas and put our order in. Before we leave we collect some other food and veg and then drive home in the unrelenting rain.

Back home I put my washing in and settle down to watch football and rugby. I have things to do but frankly I find myself lacking motivation, tomorrow is my injection day and by mid afternoon I have started to take some paracetamol. This is part of my routine that ameliorates the side effects of the injection. I am expecting to have a rough two or three days as a result of the interaction between my injection and the chemo. It will be a time when I try to rest and finish off my Christmas shopping over the net. Apart for a face to face conversation with my youngest daughter and sorting out my dried washing I do nothing this Sunday. For now I ease my way into the evening with a little more rugby and Strictly. I feel uneasy and anxious about the coming couple of days but rely on my routines to see me through.

Being the whole person not the transient thoughts are what counts.

CHEMO II DAYS 176 & 177

Fight, and laugh and fight again.

Saturday, yesterday now and already becoming a blur. Age or medication, I’ve no idea. I do remember taking, my partner to the coffee shop at a garden center in the afternoon to get a break and have a chance to chat and plan. I also recall paying the tree people for their work and then spending a lot of time on the internet giving my credit card a thorough work out for Christmas. In the evening my eldest daughter took me for my birthday treat, we went to see Dave Gorman at De Montfort Hall.

It was an excellent evening, we were right up the front of the flat stalls and had an excellent view of him at work. His brand of humour is unique and unusual in the way it uses what is available on the internet and in the media generally. A lot of laughter, maltezers and ice cream later we drove home. The only thing that marred the evening was the drive there. My favourite into town route was suddenly barred by cones and meant finding another way to the venue, which was a pain in the arse but we still go the venue with time enough to do battle with the parking ticket machine that refused to coins despite having a slot to do so. Once home I took my night meds and opened up the laptop to draft the blog but was just too tired, I did not have the spoons for it so went to bed.

Saturday I wake and have a coffee to get going when my partner asks why the shower down stairs is not running hot. I investigate, I test, I concluded, the hot water valve on the mixer bar is fucked. So I text and ring our local plumber, no response of course because its Saturday and he is semi retired, this does not however stop him putting “emergency and maintenance plumping ” on his business card. I guess emergencies are all relative depending on day of week and weather conditions. So on a rainy Saturday a broken non life threatening broken shower value is probably not worth the effort.

It looks like it it should be so simple to do but experience tells me it is beyond me.

I eat breakfast, take my meds and then start to draft the blog, catching up on yesterday. A friend sends a link to a tracker App, which means I can watch his progress on his journey up from Plymouth to the venue for our meal later. I’ve not seen this before and I am fascinated by it as I zoom in and out to him zipping along the M5. This is a great App and will get him to show me how it works when he arrives. Strikes me as a really useful thing to know how to do.

My dinner with friends it a delight and it is really good to see them. I drive home to an evening of Strictly and Crossing the Lines, before I down my night meds and go to bed. Its been a good day but one that has drained me of spoons. I’m too tired to do anything else to the blog, it will have to be enough.

Sometimes tiredness just makes me mute

CHEMO II DAY 175

Fight, who wouldn’t.

Thursday and its raining again as I wake up. This is day two of cycle 7 and its starting to be a slow day right from the off. I go through my routine message, email and cyber litter sifting. There is nothing of note in all of this except the bill from the tree man who was working here yesterday. I eventually get out of bed and have breakfast and begin to make a plan for the rest of the res of the day. There are some messages to be dealt with from the solicitor.

Noon rolls round all too quickly. I and my eldest daughter walk down to to the village pharmacy and shop to gather up some food but also my next drugs order including the coming Mondays injection. In anticipation of the injection weekend my eldest daughter and I round up as much paracetamol as we can. The household has run out so by the end of our trip we have gathered up four packets of paracetamol, that should see us through. I take a quick trip to the post office and get stamps for my partners Christmas cards. Once settled in home again I watch the penultimate edition of Steph’s Packed Lunch, eat a sandwich and continue to watch the COVID review. Boris is continuing to be quizzed and wriggling like a worm. The KC representing people with Long COVID could get nowhere with Boris who just kept saying that the best way of dealing with Long COVID was to stop people getting COVID in the first place. He was unable to say anything constructive about Long COVID in its own right. By the end of the hearing today Boris had done nothing to change the view that he is a slimy toad. Apparently such phrases as “utter bollocks” and “fucked up” are to be considered unpolished language designed to encourage freedom of speech and to widen the range of opinions given in government.

My evening moves on to tea followed by a taxiing of my partner to a friend for coffee before settling down to a football match. I’ve done bugger all today really, I’ve not read, not trained, not gardened and written nothing, but I have discovered that its good that jam doughnuts come in bags of five. In effect this has been me marking time on a very rainy day. My eldest daughter goes out with friend so I spend my evening watching football and Mock the Week. What remains is to draft the blog, take my meds and get a good nights sleep.

So much comfort in such simple things!

CHEMO II DAY 174

Fight, but eat well too.

Wednesday and welcome to cycle seven of my second bout of chemo. Remember this is not a cure this is palliative care, I had to sign papers to say I understood this. It’s the “their doing their best best but we cannot cure you ” oncology clause. So I wake up to a coffee with my partner already up and about around the house. It is she who greets the tree folk who have returned to load up the logs from yesterdays tree felling and to stump grind. Before I can get up my partner is already helping our injured houseguest wash her hair. When the cost is clear I get and my partner makes me breakfast before I get myself into the shower. I’m tired this morning and things take time. There is nothing in the post for me so I catch up with filling this weeks drugs wallet with the first days of cycle seven chemo pills. As I am in admin mode I also pay the invoice for the work done to our boiler. Thankfully the boiler is now tickety boo and keeping us warm and supplied with hot water.

Noon arrives and I drive my partner and I to a lovely little restaurant in a village not far away. Unfortunately it is one of those posh villages with “historic history” and no bloody parking. What parking they have got at this time of year is taken up with Christmas stalls filled with crap that no one really wants. I’ve learnt my lesson, if we do this again I’ll Uber it. IN the end I drop my partner off at the restaurant and drive off to find a side street to park in and then hike back to the restaurant myself. Its a posh restaurant full of nice country types with the usual accessories, so I am not sure that my “fuck cancer” T shirt and long white pony tail that spills over my shoulders once my beanie is removed, is viewed as quite fitting in with the rest of the clientele. The restaurant staff are of course polite and attentive. The meal is excellent and I in effect have a Christmas dinner including a minimal serving of sprouts, just the two, but it makes me feel festive. By the time I have gone through the Christmas pudding I am up for a black coffee and an Armagnac. Over our lunch my partner and I take stock of Christmas and our unforeseen circumstances and chip away at a plan. By three o’clock we are done, pay the bill and march off to find the car. There is a bit of me that wants to build a huge five story car park in the middle of their village and clad it with murals of Morris dancers and Maypole dancing. It would of course have a community of rough sleepers or traditional tramps living in it so the gentle folk of the village could knit mufflers for them and take them broth, while the local parson could mobilise his parishioners to make a special effort at Christmas to take one for the festive season. Any way we drive home through the end of school traffic.

Once home I go into the garden and look at the back of the house without the trees, it look big and open. Taking the trees out has made a huge difference. I retreat to the sofa as my partners brother arrives to talk family business. I take a well earned post lunch nap and wake up in the dark, I do believe my own snoring has roused me. I start to draft the blog and drift toward the evening. No doubt I will rue the sprouts later but for now I am content enough to idle time until Shetland is on. Shetland comes and goes and its time to prepare for bed, so its my night meds which includes the first of chemo cycle 7, setting the dishwasher going and a bit of last minute tidying.

Deja Vu, again ,so start again.

CHEMO II DAY 173

Fight, just fight.

Tuesday and this really is the day the tree men come, it is also the last day of Cycle 6 of the chemo. I’m still in my dressing gown trying to book a lunch slot at a local restaurant for tomorrow when the first of the tree folk arrive. I met them at the back door and point at the trees that need to come down and they then start to produce a prodigious array of chainsaws. I leave them to gear up while I finish my booking and then have breakfast. My partner has already got our house guest’s on the way. I do my vitals and dress, preparing for the day to come.

Soon there is the whirr of chainsaws and I am completing my blood pressure Excel spread sheet for the end of this cycle. My vitals are generally good so my cycle averages are good. My arithmetic continues to give good logic. Pretty soon I am working to the background whirr of an industrial chipper. I know how I would get rid of a body, the machine is a real beast and chips huge chunks of wood. A human would be wetter but no trouble for this beast of a machine. My partner makes them tea before going off for a birthday coffee with a friend. Once she has gone I wrap her presents and write the card in preparation for tonight. The post man brings a welcome letter from a friend which I read with coffee and a slab of fruit card. Then its my turn to go out as I leave I note the tree folk are pretty nimble.

Agile tree folk
The beast machine

I go to the post office to send my Christmas cards and then pick up my car and drive into town. As usual I park up in a town centre car park. I’m on the second floor and as I walk out I notice a young person curled up in the corner with the usual survival paraphernalia. As I pass by the young woman say hello. She look about fifteen. I walk down to the hospital and go to the pharmacy. One of the pharmacy workers takes my details and starts to hunt for my prescription. This is not a successful hunt for a vey long time. This pharmacy is just not organised, there are numerous people who are waiting for a long time for their prescriptions. Eventually they find my bag of goodies and hand them over. It feels a longer walk back to the hotel car park. I pay my fee and return to my car. I leave and drive to a Sainsburys where I acquire a birthday cake for my partner and then home.

The tree folk have left for the day leaving behind a giant set of draughts in the garden. Tomorrow they will return. The evening comes around and the family eat and then do birthday cake and presents for my partners birthday. I clear the kitchen and then settle down to watch a football match. A strange game where England thrash Scotland 6-0 and fail to qualify for the euro nations semi finals and the Olympics. My partner and I then watch a couple of episodes of Crossing the Lines before going to bed. I find time to draft the blog, which is probably a bit disjointed as I feel drained now.

Christmas is a coming so make way for present anxiety.

CHEMO II DAY 172

Fight, do it right to do it right relentlessly.

Monday I wake up to find the household ahead of me, this is tree day. A single text message changes all that, the weather is so wet the Arboreco team postpone their day up our trees. Tomorrow will have to be the day instead. So my day starts with toast and morning meds and then my partner and I set about planning the day and making sure that our house guest is okay. There appears to be an ongoing boiler problem so we have no hot water, in light of that my partner goes to her brothers to have a shower.

Well what is a chap to do in these circumstances, there can only be one answer; Christmas cards. As I result I spend all morning and part of the afternoon writing cards. Always interesting to note the thoughts and feelings that run alongside this task. There are moments of not knowing what to put in a card and others flow easily. I have of course got my list form the last five years, which has been amended over that time. The dead of course do not get cards, they are easy, but then there are those who seem to have fallen off the communications radar but not out of the address book. Further are those who have declared their hand by declaring that they just can’t be arsed for what ever reason or have chosen charity over the individual. I just decide to send to everyone in my address book because I am ethically and philosophically lazy. This year poses a unique question, do I send cards to the Scottish branch of the family. In previous years my sister has sent them cards and maintained some sort of contact. As the last of my generation on the London born side of family it probably falls to me to at least make the effort to maintain some sort of link if not for me then for the grandchildren who might want have an interest in the extended family. So that means another dive into my sisters address book.

At this point the boiler guy arrives. I do my best to explain what is going on. He checks what is going on and says “Ah”. He turns down a coffee and gets on with prodding the circuit board in the boiler. I leave him to it and renew my card task. After a few minutes the boiler guy gives me the thumbs up. Apparently having put in a new three way valve there is sometimes enough residual current to trip the really sensitive control boards in the boiler systems. This is so common with our particular boiler that the manufacturer has produced a specific new part to overcome this problem. Basically a capacitor that soaks up the additional current. My boiler man has added the part and tested the system so now the boiler switches on and off as it should.

Before I get back to the card task I check that our houseguest has all she needs and I find myself recommending a couple of books to help while away time. Having checked that she is good as can be I head off to the garden and remove all the things that might impede the tree folk tomorrow. So washing line, bird feeders, bug hotels, squirrel feeders and hanging baskets all get moved and tucked away. Finally I remove the trip hazard of the power lead to the Shed. I return to the Christmas cards and the radio, inevitably more Infinite Monkey Cage, before my partner returns home from greeting the new carer for her mother.

So another evening starts. No rugby, no football, no snooker, its going to be free view Crossing the Lines and some sort of preparation for tomorrow as its my partner’s birthday, and also the day Cycle 6 of chemotherapy ends and the day I need to collect cycles 7,8 and 9 from the hospital pharmacy, which I can only do in the afternoon. There is of course the excitement of the Tesco delivery to come as well. I end my day moving cars to facilitate the tree boys in the morning, then its night meds and off to bed.

CHEMO II DAY 171

Fight, no matter the odds fight.

Sunday I wake up and of course weigh myself. To my great surprise I once again weigh in at 97.3 kilos, that the third week in a row that this has happened. So I have a stable weigh at the moment for which I am thankful. My partner brings me a coffee and tells me that the carer who broke her ankle is being discharged from hospital this morning. So the day starts with finishing off the preparations for her to stay. At the same time I switch the temperamental boiler on to get the house up to the right heat. There are still some small things to do to make sure our house guest will be comfortable. Alongside this is the need to repark the cars and clear the pathway so that people can get in and out. My partner adn I have just finished our chores and sat down to a coffee when the ambulance arrives with our house guest on board. She is accompanied by two crew who clearly have a great deal of experience in moving people in and out of houses. They take one look at our front porch and know they will need the lifting chair.

After a careful and well choreographed entrance we are able to get our guest into one of the recliners and settled in. We chat for a while and then move what needs moving to her room. After feeding her healing scrambled eggs and toast my partner and I go to the garden centre to top our fruit and veg supplies along with a visit to the in house butcher. While there we take a pause and think through some of the things we need to be doing and what our options are. We do this over warm drinks and a scone until we think we have a some options sorted out. With that done we peruse the artificial Christmas tree options. My partner has been very clear that we were not ordering off the internet if we had not seen the tree in the bark, so to speak. There were a large selection of artificial trees, some with snow, some with lights, some with stands, some with out. We took our time as we weigh the options. Firstly we decided on the quality and type of foliage. Of course we knew the height required as we had premeasured. With those decide it was a case of selecting shape and density of the tree. Finally we made our choice, and of course being us we picked quality and the price that went with it. My partner and I loaded it onto a trolley and wheeled it to the checkout, where we found someone to help take it outside to load into the car. I had hoped that it would go across the back seat. No such luck. So finally we manage, in the rain, to get the seats down flat and the box in. We drive home in the rain and leave unloading the tree until we can do it in the dry.

I settle down in the lounge with our quest and chat for a while until I sort out another heater to make sure everyone is able to be warm all the time. My partner cooks us all tea and then its time to get or house guest upstairs to her room and settled in. I clear the kitchen and then catch the tail end of Strictly not being a results show due to one of the contestants being dropped by the professionals in rehearsals and breaking his rib.

The evening drift into TV and eventually evening meds and bed. Tomorrow is going to be full on, as the tree folk are coming to do their work, the boiler man will arrive in the afternoon and I’ve just noticed a kitchen strip light is not functioning. Some where in there Tesco will deliver and we will all begin to getting used to a new household for a couple of weeks. Big day tomorrow.

CHEMO II DAY 170

Fight again, again and again.

Saturday and I wake to a day of ice outside. There is coffee and toast to start the day. I go through my ritual of filling my drugs wallets for the next two weeks. My daily meds taken I start to get the spare room ready for our house guest who may join us today or tomorrow from hospital. I start to get my sports clothes away and then its a case of hoovering the house through . Once again I ring the boiler people and arrange someone to come and check why the boiler is not turning off. While I am at it I get the tree people to confirm they are coming on Monday. Its clearly going to be a busy day. I do all I can to tidy up before I need to rest with a coffee. In my journey to the compost bin to get rid of some old fruit I notice that already there are bulbs poking up in one of the tubs, apparently Spring is here already.

Can Spring really be here already?

I break for coffee and soup with snooker in the background. Its time to do more house pre adn to strip the spare room bed. A bit more rugby and then I pop round to the neighbours to tell them that Monday is going to be a bit noisy as the tree people set about taking our trees out of the back garden. They seemed happy enough. Back home out of the chilly night I return to more rugby.

The evening will be one of shear laziness and relaxation. There is Dr Who and Strictly to see me through adn some other nonsense until the football highlights arrive. If I am feeling the need to be productive I might write my Christmas cards. I have half a mind on tomorrow when there is food shopping to be done and some organising to ensure our busy Monday goes smoothly. So for me its night meds and hopefully a good nights sleep.

Life can be a bit of a bugger so celebrate when you can.

CHEMO II DAYS 168 & 169

Fight, rip out the throats and hearts of that which opposes you.

Thursday the 30th of December. A shit day. One of those days when everything seems to be against a serene and peaceful life. With my partners carer in the hospital with a broken ankle my partner spends a day with her brother trying to find a solution to her mothers twenty hour care. The boiler fails again and that needs to be sorted. My oncology review goes as quickly as usual but ends with my prediction coming true. I am prescribed three more cycles of chemo and a scan in the new year. There is a lot of admin to do around my sisters estate. By the evening everyone is tired and retire early to bed.

Friday starts with difficult thoughts about the day before and decisions to be reviewed and changed. I ring the boiler folk who agree to send an engineer in the afternoon. I get up take my meds and start to try and organise myself as my partner prepares for another difficult day. I get ready for the boiler person to arrive and start to finalise some of the solicitor paper work that needs doing. My partner and her brother work on finding suitable care for their mother and the boiler man turns up early. Eventually a trip to the post office sees the end of the solicitor admin. Later my partner returns. The evening comes around quickly and the tiredness of the past two days catch up with me. I draft a short blog, compact and a reflection of the fatigue of the last two days. I take my meds and go to bed knowing that tomorrow there is an effort needed to prepare the house to possibly receive the injured carer as a house guest for a while. It is going to continue to be a busy and challenging day.

Regaining balance means letting it be enough.