
Saturday and Sunday are days of frustration, there is no sign of my blood results. I fear that I have been ghosted or excluded from the “patient knows best” website. It is run by the Kidney and Urology departments at the Leicester Royal Infirmary and I think I might have been taken off the list of clients due to my discharge. If I am right then it is poor timing as at this moment in time my kidney efficiency is in question. So I feel bereaved as knowing what my blood results are enables me to assess my situation and gives me direct and relevant feedback about my situation. It plays to my high Locus of Control score which means I respond better to intervention when given the means to affect my behaviour, denied the data it makes being proactive and positive much more difficult. I may need to find a new way to access my blood results, perhaps via my GP surgery or the specialist prostate nurse.
Most of the weekend has been spent watching sport, FA cup semi finals, the London Marathon (first ever sub 2 hour marathon, a truly historic moment.), and of course the world snooker championship. My partner has of course been to visit her mother in hospital, which has been tough. My one real effort has been to train on Saturday. I had to do two ten minute sessions due to the set up of the monitor but I managed to do 3.8 kilometres over 21 minutes so I feel I had a reasonable session. This and preparing Saturdays evening meal took most of my energy and left me to while away Saturday evening watching the end of Young Sherlock. I took my meds and headed for bed with the hope that my bloods would turn up, they didn’t.
Sunday is overshadowed by the fact that tomorrow is 28 day jab day. So I am preparing myself for the grim two days that follow the jab. Apart from Tesco delivering I also have six bags of chippings for the garden arriving, so its going to be quite a busy day. In the meantime I fill the bird and squirrel feeders and draft the blog. The rest if the day will be a meander until I have taken my meds and gone to bed ready for an early jab start to the day.


