Sunday is a day of Olympics and preparing for tomorrows oncology review. One of the things I do is complete a fatigue assessment test the FAS. It turns out I am at the top end of moderately fatigued, most of it being physical fatigue rather then mental fatigue. I scribble notes in the margins of my bloods results. I putter about, lay a new fire in the chimenea for future use and update my blood pressure Excel data base. In the evening there is athletics and SWAT before I take my meds and stay up and watch the arse end of a film to try ensure I am properly tired before going to bed.
Monday, oncology review day. I have slept reasonably so I get up and have breakfast. I take my meds and then wait for the oncologist to ring me. To my surprise ” He who made a pact with the devil” rings me quite soon after the start of the appointed two hour slot. I gave him my recent history and the fact that my GP has referred me for to the sarcoma (lumps adn bumps) clinic for Monday. He is convinced that these bumps are the result of five years of injections and that they are an accumulation of some sort. He says he will talk to his colleagues to speed up the ultrasound and book me an MRI as it will be quicker. I tell him about my fatigue and he is clear that this just needs exercise and again reiterates the need to train till sweaty for 30 to 40 minutes at least 3 or 4 times a week. He tells me he will prescribe my current drugs for another 3 months and then goes. It is as I predicted. Another surprise followed when a lumps and bumps person rings me and we discuss Mondays appointment. I am told to turn up at my time and I will get an ultrasound scan, which will take about ten minutes before I see someone from the team. So it is continue on as planned on that front. So that’s the morning done and I make lunch while my partner goes to the gym for the afternoon leaving me and my eldest daughter to sort out tonights meal.
After a bit more Olympics I drive myself and my eldest daughter to the local garden centre and load up with meal options for the next couple of days. On returning home I do todays crosswords, which I do easily and then start to draft the blog and plan for how I am going to get back into doing the exercise I need to do. First of course is to check the rowing machine is working and lubricated and then changing my daily routine. At the moment my best chance is probably to get up and train, eat, do drugs and shower. My guess is initially that will take all the spoons(energy) I have for the day. It appears the only option that I have being offered to me. So this evening has to be my last indulgent evening of TV, from now on it has to be early nights and determined mornings. I will be interested to see how it goes. While I draft the blog the pharmacy send me a message to say my meds will be ready to collect on Thursday afternoon. Just another bit of the juggle. Before this evenings joys I go to the garage to check the rower out.
After some jiggling and swearing I get the batteries changed in the rowers read out and the display reset, so all is ready for me to start my new activity regime tomorrow, god help anyone who gets in my way, it going to be rugged enough to start up again after months of lack of training. Along with new activity the diet will have to change. Its time to ditch the sweets, biscuits and other goodies as well. I guess my first check point will have to be Christmas in terms of fitness and weight loss. I predict a grumpy patch slowly changing into a sunny spell.
